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  1. MeSci
    Thread

    EDS sufferer to study medicine after long wait for correct diagnosis

    For years, Suffolk teenager Katy Shaw's symptoms were either misdiagnosed or not believed. Eventually she was found to have a genetic disorder...
    Thread by: MeSci, Sep 29, 2022, 5 replies, in forum: Fibromyalgia and Connective Tissue Disorders
  2. MeSci
    Post

    AAV-delivered gene editing for latent genital or orofacial herpes simplex virus infection reduces ganglionic viral load..., 2022, Aubert, et al

    Mouse models. Extremely unlikely to be relevant to humans.
    Post by: MeSci, Sep 28, 2022 in forum: Other health news and research
  3. MeSci
    Post

    Long Covid in the media and social media 2022

    True, but near the end of the article she is quoted as saying: "Just keep positive because if you don't keep positive you can't get anywhere,"...
    Post by: MeSci, Sep 23, 2022 in forum: Long Covid news
  4. MeSci
    Post

    Long Covid in the media and social media 2022

    Merged thread Girl, 10, with long Covid completes garden lap unaided after re-learning how to walk I saw the following on my local news website...
    Post by: MeSci, Sep 23, 2022 in forum: Long Covid news
  5. MeSci
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I have IBS too, as do many people with ME, but I am being sent a spit kit. I'm pretty sure I ticked the box for IBS.
    Post by: MeSci, Sep 21, 2022 in forum: Recruitment into current ME/CFS research studies
  6. MeSci
    Post

    Hair loss and changes to fingernails

    I wonder if that's an issue of differentiation between types/causes/even genders? I became really ill on biotin - perhaps permanently but at...
    Post by: MeSci, Sep 20, 2022 in forum: General and other signs and symptoms
  7. MeSci
    Post

    Hair loss and changes to fingernails

    I think that my fingernails are better since taking quite high-dose calcium. I take a gram a day, plus magnesium and other things.
    Post by: MeSci, Sep 19, 2022 in forum: General and other signs and symptoms
  8. MeSci
    Post

    Valerie Eliot Smith blog (6th Sept) - 'stepping back'

    I would also like to thank you, @Valerie Eliot Smith. I think that you have done a lot of good for our illness, and it is only fair that you...
    Post by: MeSci, Sep 15, 2022 in forum: General Advocacy Discussions
  9. MeSci
    Post

    Hair loss and changes to fingernails

    I suffered hair loss in about 2015-16, 20 years after developing ME. Quite large amounts were coming out, which was rather alarming! It...
    Post by: MeSci, Sep 14, 2022 in forum: General and other signs and symptoms
  10. MeSci
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I hesitated over this too (I finally re-registered, for the 3rd time, I think!). Like a large percentage of sufferers, I have a lot of...
    Post by: MeSci, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  11. MeSci
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I don't think I've received an email from DecodeME since 02/10/20, and haven't received today's. So maybe my participation isn't needed?
    Post by: MeSci, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  12. MeSci
    Post

    Video What is ME/CFS?, 2:20 minutes, by Broken Battery.

    Brilliantly done, @Adam pwme. No need to use your precious energy replying.
    Post by: MeSci, Sep 12, 2022 in forum: General Advocacy Discussions
  13. MeSci
    Post

    ILC3s select microbiota-specific regulatory T cells to establish tolerance in the gut [in mice], 2022, Lyu et al

    Mice again!
    Post by: MeSci, Sep 9, 2022 in forum: Other health news and research
  14. MeSci
    Post

    Microbiota imbalance induced by dietary sugar disrupts immune-mediated protection from metabolic syndrome [in mice], 2022, Kawano et al

    Maybe put in title that it's research on mice, which is very rarely relevant to humans.
    Post by: MeSci, Sep 9, 2022 in forum: Other health news and research
  15. MeSci
    Post

    First test for long Covid gets EU approval, August 2022 - IncellDx incellKINE Long COVID test

    What does this mean?: "Products Regulatory Agency, before it can go on sale here."
    Post by: MeSci, Sep 5, 2022 in forum: Long Covid news
  16. MeSci
    Post

    YourgutPlus+ - a pro- and pre-biotic supplement

    By 'Chandler fatigue questionnaire' do they mean the Chalder one?
    Post by: MeSci, Sep 2, 2022 in forum: Drug and supplement treatments
  17. MeSci
    Post

    Personalized microbiome-driven effects of non-nutritive sweeteners on human glucose tolerance, Suez et al, 2022

    He's talking so fast that it's hard to be sure - perhaps someone else can check? But I think that he referred at least three times to rodent...
    Post by: MeSci, Aug 25, 2022 in forum: Other health news and research
  18. MeSci
    Post

    M.E. and me (My Story as a Teen with ME/CFS) - Youtube Channel

    I watched the linked one until she started going on about 'God'! (Apologies to others who believe)
    Post by: MeSci, Aug 18, 2022 in forum: Advocacy Projects and Campaigns
  19. MeSci
    Post

    Trial Report The most severely ill patients with ME/CFS in Denmark, 2024, la cour

    Is this an unintentional error?
    Post by: MeSci, Aug 18, 2022 in forum: ME/CFS research
  20. MeSci
    Post

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    CPD = Continuous professional development??
    Post by: MeSci, Aug 16, 2022 in forum: Training courses
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