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  1. MeSci
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    I received a card today too - didn't notice who from but it was probably the same. Such a waste of resources.
    Post by: MeSci, Dec 29, 2022 in forum: Fundraising
  2. MeSci
    Thread

    Phantoms in the Brain - BBC radio programme on 'Functional Neurological Disorder'

    This was broadcast on Tuesday - sorry it's taken so long to notify. I haven't listened to it. "In this episode, we meet Kirsty, a young, fit and...
    Thread by: MeSci, Dec 22, 2022, 14 replies, in forum: Other psychosomatic news and research
  3. MeSci
    Post

    Covid-19 vaccination experiences

    I wasn't sure what LTSE was, but a search on this site says that it's Long term symptom exacerbation.
    Post by: MeSci, Dec 18, 2022 in forum: Epidemics (including Covid-19, not Long Covid)
  4. MeSci
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Well, most of the symptoms are disabling, aren't they? It just seems a strange thing to cite.
    Post by: MeSci, Dec 9, 2022 in forum: Recruitment into current ME/CFS research studies
  5. MeSci
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Is the bar for 'disabling' an error?
    Post by: MeSci, Dec 8, 2022 in forum: Recruitment into current ME/CFS research studies
  6. MeSci
    Post

    From academic success to cognitive disability

    I gained a Bachelor's degree and a First Class Masters degree in the early days of ME. Now I am worse affected both physically and mentally - no...
    Post by: MeSci, Dec 8, 2022 in forum: General ME/CFS discussion
  7. MeSci
    Post

    Which scientists and research groups would you want to bring to the ME/CFS research field

    This is the wrong way to go. Animal models do not work.
    Post by: MeSci, Dec 5, 2022 in forum: ME/CFS research
  8. MeSci
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    At last! I've received an email from DeCode ME saying: "Dear Participant, We've received your saliva sample and are checking it to make sure we...
    Post by: MeSci, Nov 23, 2022 in forum: Recruitment into current ME/CFS research studies
  9. MeSci
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    How soon would you expect Decode ME to reply to an email? I sent mine enquiring about the lack of response to my sending my sample, on the 14th.
    Post by: MeSci, Nov 18, 2022 in forum: Recruitment into current ME/CFS research studies
  10. MeSci
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I haven't received acknowledgement despite sending my sample over a month ago, so I've emailed them: "Dear Decode ME, I sent my sputum sample to...
    Post by: MeSci, Nov 14, 2022 in forum: Recruitment into current ME/CFS research studies
  11. MeSci
    Post

    TAKING THE GLUTEN CHALLENGE- THE CHRONIC ELEPHANT BLOG

    I am NOT having a gastroscopy! I gave up gluten many years ago without being tested. It has helped a lot, I think, and is the non-coeliac type....
    Post by: MeSci, Nov 13, 2022 in forum: Home adaptations, mobility and personal care
  12. MeSci
    Post

    Brunel University London - Reactivation of herpesviruses in Chronic Fatigue Syndrome

    "which will lead to the development of specific drug treatments". Rather optimistic!
    Post by: MeSci, Nov 9, 2022 in forum: ME/CFS research news
  13. MeSci
    Post

    Modulation of autonomic nervous system by one session of spinal low-level laser therapy in patients with chronic colonic motility dysfunction

    You put an extra 's' in 'patients' in the title.
    Post by: MeSci, Nov 5, 2022 in forum: Other health news and research
  14. MeSci
    Post

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    I raised awareness of this site at least as far back as 2013 on PR:...
    Post by: MeSci, Nov 1, 2022 in forum: General ME/CFS news
  15. MeSci
    Post

    Options for genetic testing

    It's a lot more than concern. I gained a Masters degree in science, and focused particularly on the reliability, or rather lack of it, of animal...
    Post by: MeSci, Nov 1, 2022 in forum: Laboratory and genetic testing, medical imaging
  16. MeSci
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    I received this too. Mostly non-recyclable, I think.
    Post by: MeSci, Nov 1, 2022 in forum: Fundraising
  17. MeSci
    Post

    Options for genetic testing

    I'm pretty sure that all transgenic animal models will do is cause animal suffering. They will not confirm or identify human effects.
    Post by: MeSci, Oct 31, 2022 in forum: Laboratory and genetic testing, medical imaging
  18. MeSci
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    $54,377 raised, 84% of target. 4 days left. https://crowdfund.berkeley.edu/project/33528
    Post by: MeSci, Oct 27, 2022 in forum: Fundraising
  19. MeSci
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I'm actually relieved that this is a common problem - hopefully it means that I don't have to worry so much!
    Post by: MeSci, Oct 25, 2022 in forum: Recruitment into current ME/CFS research studies
  20. MeSci
    Thread

    BBC Health: 'My illness is so rare it doesn't have a name' - new Welsh clinic for nameless conditions

    This article mentions the fact that there is too much specialism so that people are seen by numerous 'specialists'. For example: "As an...
    Thread by: MeSci, Oct 25, 2022, 4 replies, in forum: Other specific illnesses
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