A few other thoughts: Patients could also be being diagnosed differently (looking occasionally at social media, I've noticed a number of "EDS-III...
That's a remarkably good idea. I think it's probably attributable to the structural differences between our healthcare systems. In the US there...
Copied from the Wessely thread This has just reminded me of something. Many, many years ago I posted a bunch of "bad ME quotes", derived solely...
Copied to thread on Shorter This has just reminded me of something. Many, many years ago I posted a bunch of "bad ME quotes", derived solely...
Indeed, which is why I mentioned that I would've liked to see testing for a wider set of markers. Both aldolase & LDH are more widely expressed,...
Thanks, I missed that post - your point about the timings is well made, although I think if there were an atypically high exercise-induced CK...
And if it is significant there should be corroborative biochemical evidence of this - a very quick skim of the paper shows that they tested for CK...
I think we need to look at this at two different levels. Firstly, from the perspective of a person diagnosed with "FND" they have remarkably few...
Making a thread for this because there are very few post-viral/post-infectious conditions where the pathophysiology remains enigmatic and because...
A long time ago I chased down some of the references in SW's papers - in his infamous "Old wine in new bottles" paper, he references the preface...
Just done this. A few initial thoughts: 1) On the "level of physical function" question: the two closest options for me are ".. 50% of expected....
For anyone wondering how medical dictionaries define "malaise"... Mosby's medical dictionary: malaise [Fr, discomfort] a vague uneasy feeling of...
Full letter is here. Same old....
Chronic fatigue syndrome and subsequent risk of cancer among elderly US adults Cindy M. Chang PhD, MPH, Joan L. Warren PhD, Eric A. Engels MD, MPH...
I think that was the request to QMUL that @dave30th discusses here: I think what many of us would like to see, short of the dataset being made...
I hadn't seen this before; I've just done it. A few comments (under a spoiler tag, as I discuss specific questions): [spoiler]
Same with "complex". Peptic ulcer being caused by a pathogen seems simple enough in retrospect but was not at the time; perhaps in a decade ME...
On the dietician-with-a-specialist-interest recommendation - I thought this was bizarre, but it's specified in the GL ("Refer people with ME/CFS...
A few random thoughts: 1) There seems to be an assumption throughout this document that there currently exists a pool of ME/CFS "experts" who need...
There is one other possibility. I believe NIHR grant-funding committees require lay participation ("public contributors", they're called at NIHR)....
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