isn't vitality 360 based in Brighton too? as well as other outposts..
otherwise known as 'transdiagnostic'? Agree that this is good advice noting the 'Sussex' part and imagining the Sussex group will think they are...
yep thinking of the PO inquiry there were a lot of 'I don't recall' claims to emails It's a bit harder to claim that when they’ve written or...
and there is the noise from MRIs vs pwme - I've no idea how long these scans would have been for, or if they looked at the method in detail enough...
Does the latest reponse by White etc in the Guardian: A dualistic view of illness doesn’t help those with ME/CFS | ME / Chronic fatigue syndrome |...
The continued attitude from Tyson to not just dismissing that feedback on long surveys and the accessibility/exclusion/harm individually to severe...
I get that these might be heterogenous, particularly circadian rhythm, from talking to other pwme - but don't know whether that is different in...
Oh and PS I think this is why calling it an 'illness of exclusion' rather than moving towards (certainly with better research) it being an illness...
Ugggh definitely intrigued by the surname!
Indeed I saw this and thought of the phrase ‘playing the system’ and of course it’s these HCPs who are wanting to profit by knowing where the...
Yep I think when I’ve looked at the long covid services they generally seem to be an ‘anything but [the actual condition me/cfs] service’ I get...
Are there any billboards outside their offices? :rofl:
Yeah well, the fact she hasn't mentioned external validity, just the tools themselves is concerning. Psychometric doesn't mean much, we want to...
from what I've heard of them then an adult version of TRACCS sounds like the opposite of what pwme need , particularly the very severe. But...
I'm with you @Trish - it is a real surprise from these charities and not something I think that they have been given mandate for by those they...
I can relate. :hug: I used to when I was moderate and still working have office days and work from home and could sit in my bed or on the sofa...
To throw in fatiguability, there is a specific 'judder/three tugs' that eg my legs sometimes do when they are 'done' - it was particularly obvious...
have we gotten to the bottom of why this no PEG thing came in, and I mean really - was there some funding thing or was it sold on a waste of money...
The way things have been twisted to be set up removes all the faith in that person and voice over themselves no matter how many times they...
It’s bad enough. What do those facing all this but have no support and find those around them sort of have these it can’t be that bad try this for...
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