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  1. JemPD
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Sounds good :) @Andy just wondering if we have any indication how the “spit kit” returns are going? Last I heard there were about 4K still out...
    Post by: JemPD, Dec 5, 2023 in forum: Recruitment into current ME/CFS research studies
  2. JemPD
    Post

    ME on NHS apps

    Well done for raising that! But if I were you, considering your location (kings) I’d be inclined to be suspicious about why they asking about MEA...
    Post by: JemPD, Dec 5, 2023 in forum: UK clinics and doctors
  3. JemPD
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Typical 'alternative' health practitioner's approach. If you feel better while taking the supplements = it must be the supplements that are...
    Post by: JemPD, Dec 4, 2023 in forum: ME/CFS research news
  4. JemPD
    Post

    “Somewhere Between an Actual Disease and a Disease”: A Grounded Theory Study on Diagnosing FNDs From a Multi-Informant Perspective 2023 Sireci et al

    eh? 'yet to be considered'? its all that seems to get considered!
    Post by: JemPD, Dec 1, 2023 in forum: Other psychosomatic news and research
  5. JemPD
    Post

    Evidence of cochlear neural degeneration in normal-hearing subjects with tinnitus, 2023, Maison et al

    but dont worry about that pesky neural degeneration, because CBT will sort it out
    Post by: JemPD, Dec 1, 2023 in forum: Other health news and research
  6. JemPD
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    Me too! Great news :)
    Post by: JemPD, Nov 30, 2023 in forum: Fundraising
  7. JemPD
    Post

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Oh no
    Post by: JemPD, Nov 30, 2023 in forum: General ME/CFS news
  8. JemPD
    Post

    Sabine Hossenfelder, physicist, talks about Long Covid

    brilliant it'd be great if she'd join us here
    Post by: JemPD, Nov 29, 2023 in forum: Resources
  9. JemPD
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    i assume iys this UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023 | Science for ME...
    Post by: JemPD, Nov 29, 2023 in forum: News from organisations
  10. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Thanks @Kitty Also from that news article my bolding
    Post by: JemPD, Nov 28, 2023 in forum: Work, Finances and Disability Insurance
  11. JemPD
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    I hope people will email their comments on this thread to the MEA who are asking for feedback. OTherwise the MEA are likely to tell BACME 'oh yes...
    Post by: JemPD, Nov 27, 2023 in forum: News from organisations
  12. JemPD
    Thread

    Sabine Hossenfelder, physicist, talks about Long Covid

    Moved posts Someone i know just posted this on fb is this any good as a video ? is the info accurate i am too ill to watch it. anyway am...
    Thread by: JemPD, Nov 25, 2023, 8 replies, in forum: Resources
  13. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    They can - i asked on the B&W forum a while back (moderated by people who know) and they confirmed they can see the other awards and have access...
    Post by: JemPD, Nov 25, 2023 in forum: Work, Finances and Disability Insurance
  14. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Post by: JemPD, Nov 25, 2023 in forum: Work, Finances and Disability Insurance
  15. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    ugh.. i feel for you. Hoping & praying it goes well for you. Should you want to you can ring them to find out when the next schedued review is...
    Post by: JemPD, Nov 25, 2023 in forum: Work, Finances and Disability Insurance
  16. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    We are all making ourselves sicker trying to read up & understand it all, & the added terror & distress. Its so very wrong.
    Post by: JemPD, Nov 24, 2023 in forum: Work, Finances and Disability Insurance
  17. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    yeah :( so it looks like there is no assurance of the 'currently' & 'today' comments being accurate in a literal way doesnt it? IT looks like i...
    Post by: JemPD, Nov 24, 2023 in forum: Work, Finances and Disability Insurance
  18. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    did they give you the figures for ESA or was that not what you were interested in? I'm on legacy ESA
    Post by: JemPD, Nov 24, 2023 in forum: Work, Finances and Disability Insurance
  19. JemPD
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Benefits and Work News item regarding restarting reassessments as of september 2023 More WCA reviews to be carried out, DWP warns...
    Post by: JemPD, Nov 24, 2023 in forum: Work, Finances and Disability Insurance
  20. JemPD
    Post

    UK: Dr Sarah Myhill

    Not a comment on her or the content of the article, just posting for information Welsh doctor, 64, who recommended patients use livestock...
    Post by: JemPD, Nov 24, 2023 in forum: UK clinics and doctors
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