Now available on YouTube [MEDIA]
:rofl: Don't give Hollywood any ideas.
I had no worsening of symptoms in the days following my vaccines (Pfizer), but I've had a really bad few months, and I'm trying to ascertain...
I watched yesterday, and thought it was good. Too many assertions about etiology and following particular hypotheses. And I did not understand the...
I don't think this is unusual now. There's been a gradual move away from GET and in some cases ME-CBT.
A second letter, from a different postee, but from the same clinic (which means I'm not sure how widespread this feedback exercise is). [ATTACH]
Yep. Also, the clinics—as far as I'm aware—lack any sort of central (national) organisation. The NICE guideline and BACME are the main common...
I saw this on Reddit. Someone had posted saying they received a letter from their ME/CFS clinic, were dreading what it might be, but it turned out...
Does anyone have access to this webinar?
mitochondria are not cells.
Get your wallets out lads (and lasses) - it's supplement and massage time!
https://www.quantamagazine.org/social-mitochondria-whispering-between-cells-influence-health-20210706 "Mitochondria appear to communicate and...
https://www.quantamagazine.org/long-covid-how-it-keeps-us-sick-20210701/ "Understanding the effects of the COVID-19 pandemic on the population...
I think a Comms&PR initiative could be patient-led to begin with, with support from advocacy groups, patient communities, charities, and other...
It looks as though it was the precursor to BACME...
Yep. We have to persuade everyone that this time those in authority got it wrong. I think it's doable. It's happening already in some quarters,...
https://valerieeliotsmith.com/2021/07/05/beyond-the-nice-guideline-mecomms-and-the-case-for-a-public-inquiry/ Lots to think about. We desperately...
Yep. The release of the final guideline must be the start of a new campaign for properly funded, safe, adequate, specialist services - not some...
https://doctorswith.me/position-statement-2021-nice-guideline-update-on-treatment-and-management-of-myalgic-encephalomyelitis-chronic-fatigue-syndr...
The mindfulness arm tended to be more mindful. :alien:
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