Thread here: Opinion CBT and graded exercise therapy studies have proven that ME/CFS and long Covid are physical diseases, yet no one is aware of...
Quoting from the Terms used in the guideline: That says to me that it's possible within the NICE guideline to have a physician led team with...
I think it was the case of a politician temporarily in a position to do something (Sajid Javid as secretary of state for health with a family...
I don't think we're disagreeing. Physician led includes access to specialist nurses, dieticians, and other services as individually needed. What I...
I will wait with a little hope for the government to publish its plan, but I hold out little hope it will be any better than what we have now,...
We're currently preparing an appeal against this decision and the lack of information in the letter telling us the outcome.
I started from the end of the documents, don't ask me why. Came across this self aggrandisement from Sonya Marshall Gradiznik Really?
sadly because that's exactly what's happening.
I quoted from these in our letter to Cochrane about harms in March 2024:...
I've done it too. I focused where possible on medical education, accessiblity of care and the importance of understanding PEM is not the same as...
I haven't read the whole chapter, I've just skimmed it. It seems to be a thoughtful look at the experiences of people with ME/CFS and Long Covid,...
I got stuck on the first bit where they define ME/CFS as exhaustion and 'substantial decline in social and psychological functioning'. Since...
I really dislike such superficial questions, and they don't seem necessarily ones I would want my doctor to be taught as an intro to ME/CFS or LC.
Does anyone know what is going to be in the plan? I worry that a fund the plan campaign may end up asking for funds for more BACME style clinics.
Given that you haven't listed qualifications of signatories, how will the recipient know?
It might be worth submitting the letter through the Cochrane comments or complaints system. When they announced the cancellation in December they...
Thanks, @dave30th, much appreciated. To be honest I can't help wondering whether it would have made a difference if clinicians and scientists had...
Thread on the trial here: Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman
I don't get the impression from the abstract that the authors mean the public ignorance is about the biology of LC. I thought it meant there is...
Larun et al only included 8 trials, most very small. The whole review process is a major performance trying to squeeze some semblance of evidence...
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