You would have thought they would put a description of the bicycle exercise tolerance test (ETT) in the letter, or the link to the questionnaire....
Very interesting. We have multiple groups looking at miRNA's in ME/CFS. Maybe something comes of it. High-throughput sequencing of plasma...
Lubov Nathanson is shown in the PDF as belonging to NOVA. That would be Klimas's team.
Dr. Maureen Hanson is also looking at EV's as part of her NIH center grant. Link :...
Back in April a PwME emailed Bath to express concerns about the study. This was the response. [MEDIA]
That article was updated here https://www.omf.ngo/2016/09/09/updated-metabolic-features-of-chronic-fatigue-syndrome-q-a-with-robert-naviaux-md/
FYI - Gorden Broderick did evaluate blood from one such study Cytokine expression profiles of immune imbalance in post-mononucleosis chronic...
@Jenny @Wonko Robert Phair (The IDO Metabolic Trap researcher) posted on PR that he is interested to hear about sudden remission stories if you...
Dr. Emma Reinhold wrote the EDS toolkit for the RCGP's and I highly recommend folks read it with a thought on how can we do the same thing for ME!...
My two pennies worth. Suggestion : There needs to be two documents, one for GP's and one for specialists. There is no way a GP can navigate the...
Not much right now but this made me chuckle - Follow the money!!! [MEDIA] EDIT to add for those that can't see
Shoot. I cannot see them as I have an ad-blocker too, that I couldn't figure out how to turn off. Folks on Facebook can join the group by...
Thanks @Andy . That makes sense. I'd forgotten they were going to Australia 12-15th March, right before the NIH conference.
Fereshteh from Stanford Genome Technology group also hosts a closed Multi-Ohmics group on Facebook (need to request to join) where she is hosting...
Update 10th January 2019 Fereshteh Jahanbani still needs 4 HEALTHY boys aged between 14-18, LOCAL to SF Bay Area Facebook post from Nov 19th 2018...
It does look an impressive speaker list. I hope they get a good attendance from NIH staffers I'm a bit surprised that the UK ME/CFS Biobank team...
@Trish. I remember reading a post recently where you were discussing tracking people at the moment they got ill. This video is about one such...
I contacted Marilyn at OMF to let her know the concerns. This was her reply Yes. We have heard the concern loudly. I appreciate your reaching out...
It sure would be nice if the NHS could do a search of records for ESR data for patients that have an ME/CFS diagnosis. But what I hear from folks...
This is Amit's response when asked about sharing the extra details in the first "Blood" abstract [MEDIA]
Separate names with a comma.
