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  1. Woozy
    Post

    New relapse of ME after 15 years

    I am pleased to say that the relapse was short-lived. I had a great night's sleep and woke up this morning and guess what.....the tremors I had...
    Post by: Woozy, Nov 18, 2023 in forum: Neurological/cognitive/vision
  2. Woozy
    Post

    New relapse of ME after 15 years

    I didn't know LC could have these symptoms. Thanks for letting me know.
    Post by: Woozy, Nov 17, 2023 in forum: Neurological/cognitive/vision
  3. Woozy
    Post

    New relapse of ME after 15 years

    thanks Kitty
    Post by: Woozy, Nov 17, 2023 in forum: Neurological/cognitive/vision
  4. Woozy
    Thread

    New relapse of ME after 15 years

    I have relapsed with ME after 15 years of remission and it has come back in the form of tremor and myoclonic jerks at night. It gets worse as I...
    Thread by: Woozy, Nov 17, 2023, 9 replies, in forum: Neurological/cognitive/vision
  5. Woozy
    Post

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    https://me-pedia.org/wiki/Mestinon Gulf War Illness Pyridostigmine was given to Gulf War personnel to protect them from nerve gas.[17][18] Dr...
    Post by: Woozy, Nov 1, 2023 in forum: ME/CFS research news
  6. Woozy
    Post

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    Merged thread The big news that OMF said they would disclose today is their LIFT trial which is a trial to see if Pyridostigmine (mestinon) and/or...
    Post by: Woozy, Nov 1, 2023 in forum: ME/CFS research news
  7. Woozy
    Post

    Do you believe that “viral persistence” is the cause of ongoing MECFS and LC?

    I don't think so as otherwise it would be easy to identify the virus in the blood. my serology was all negative when I first had Me/CFS.
    Post by: Woozy, Nov 1, 2023 in forum: Possible causes and predisposing factor discussion
  8. Woozy
    Post

    'Long Covid Research Initiative' and Polybio funded to research viral persistence and antiviral treatments

    OMG 15 million. god these scientists are onto a good thing. In my next life I will become a scientist not a concert pianist (maybe not as I like...
    Post by: Woozy, Nov 1, 2023 in forum: Long Covid news
  9. Woozy
    Post

    NHS Wales - Primary fatigue service

    I had a lot of fatigue when I was ill with Me/CFS. PEM was moderate for me and lasted a few hours.
    Post by: Woozy, Oct 31, 2023 in forum: UK clinics and doctors
  10. Woozy
    Thread

    Is dorsal root ganglionitis the cause of ME symptoms?

    I see the ME Association say that dorsal root ganglionitis has been found in people with ME. I think sophia Mirza had it. could this be the sole...
    Thread by: Woozy, Oct 29, 2023, 2 replies, in forum: Possible causes and predisposing factor discussion
  11. Woozy
    Post

    Bipolar disorder and ME/CFS

    what do you mean?
    Post by: Woozy, Oct 27, 2023 in forum: Neurological/cognitive/vision
  12. Woozy
    Post

    Bipolar disorder and ME/CFS

    Thanks for the comments. I do wonder why I went a bit mad at 44 years of age (I am ok now) and not in my youth if I have a distinct independent...
    Post by: Woozy, Oct 27, 2023 in forum: Neurological/cognitive/vision
  13. Woozy
    Thread

    Bipolar disorder and ME/CFS

    Has anyone got or had bipolar disorder or a neurophychiatric disorder? If so, do you think your ME/CFS caused it? I had paranoid thoughts and some...
    Thread by: Woozy, Oct 27, 2023, 9 replies, in forum: Neurological/cognitive/vision
  14. Woozy
    Post

    Dr Byron Hyde - Canada

    Merged thread Is ME Non-paralytic Polio? According to Dr Byron Hyde, ME is nonparalytic polio. I have read his book Understanding ME. It does...
    Post by: Woozy, Oct 19, 2023 in forum: Other clinics and doctors
  15. Woozy
    Post

    withdrawal of liothyronine (T3) in a symptomatic tired, depressed and vulnerable patient with CFS or long COVID, 2022, Meeran

    Do you mean keeping B12 and ferritin in the ranges you quoted helps your ME/CFS?
    Post by: Woozy, Oct 16, 2023 in forum: ME/CFS research
  16. Woozy
    Post

    The use of the labels ME, CFS, ME/CFS

    moved posts what about this definition of ME: [MEDIA]
    Post by: Woozy, Oct 15, 2023 in forum: Diagnostic Criteria and Naming Discussions
  17. Woozy
    Thread

    If you had to guess ME/CFS cause, what'd you say?

    if you had to guess or say what you think causes ME/CFS from your experience, what would you say it is? I would guess it is a metabolic/hormonal...
    Thread by: Woozy, Oct 14, 2023, 148 replies, in forum: Possible causes and predisposing factor discussion
  18. Woozy
    Post

    Tinnitus treatment and management

    hi everyone. I just read your posts. So I think I will ask my GP about this tinnitus, which is less severe now than a few weeks ago. However, I do...
    Post by: Woozy, Jun 4, 2022 in forum: General and other signs and symptoms
  19. Woozy
    Post

    Tinnitus treatment and management

    sorry it is aripiprazole I think. Misspelt it first lol
    Post by: Woozy, May 29, 2022 in forum: General and other signs and symptoms
  20. Woozy
    Post

    Tinnitus treatment and management

    Merged thread Tinnitus treatment I had PVFS in 1992 and kind of recovered 16 years later. Now, about ten years since recovering I suddenly woke...
    Post by: Woozy, May 29, 2022 in forum: General and other signs and symptoms
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