I have exactly the same experience in the Netherlands. GP’s / doctors Have this standard question in their repertoire when you Come for a consult...
Not having a proper fever is definitely a thing for ME CFS - from my own experience. - and from discussion/comments from prof Meirleir important...
This is exactly the problem. I’m not aware of more than 5 (max 10) ME CFS official drug trials (with controlled data) going on at the moment, and...
So as I m cognitively impaired ️️, question : with **very indirect epiphenomenal relation to the immune system** You basically mean the casualty...
@ukxmrv Can I ask you a question about this? What protocol did you have for your cancer treatment ? Can also DM if you want.
question @Peter Did you participate at CycloME trial ?
study excess iron Mice “Excess iron comes from the body’s inability to process iron from the diet and is linked to inflammatory conditions, as...
Way out of my depth here, but Just wanted to pinpoint to this extract from the recent Biopsy study from Rob Wust on Muscle Tissue Biopsy before vs...
I think your hitting the “sweet spot”. ME-patients are in the desert of drug trials, treatments and specialist centers. Unfortunately, there is...
We should get a rating system on every published study: Rating from 1-5, e.g.: - Patient Population & use of ME CFS diagnostic guidelines - Retro...
Yes, strange, I would not know either, and I am sick for more than a decade. ME CVS Vereniging would surely know. This is their Funding page....
Ah, ok. Well Rosmalen already gets Long Covid funding through the Lifelines project.
Did they really apply for funding? Specially Knoop?
@siobhanfirestone Do you know more details about patient history / anamnesis and clinical picture & Symptoms? Typical ME CFS (strict guidelines...
I agree with all the criticism. If I would be a RA patient I would be very disappointed with this trial. Unfortunately in the world of ME CFS...
Has anyone seen Prusty Presentation? I found it very interesting. Maybe it is A repetition of Findings and Hypothesis he has mentioned before, but...
Quick search, but Can t find the YouTube link. From this conference. https://mecfs-research.org/mecfs-conference2023/ B and Plasma Cell...
[ATTACH] One case study from their May 2023 presentation.
Indeed. Every patient has to be well informed on possible risks. Therefore - by lack of doctors that are treating us - we should be able to asses...
I agree completely. One should understand that a lot of patients are already progressively severely (and violently) ill, and don’t have any...
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