Yes, that’s why I never take it during the day. Best to take it 1 hour before sleep. Don’t get active.
That is a tricky question. My assumption it’s both. Also from talking to other patients taking the same 1x / week protocol. (And e.g. Clonazepam...
Moved posts As an anecdote: I always have wondered why taking a high dosage of Pregabalin 1x/week (at night) is able to lower all my ME-symptoms...
The Crowd : “give us some more…” ;)
Verry curious about your hypothesis. Please enlighten us :) - are you referring to a downstream effect on T-cells? - and/or the effect of...
Hypothetically: which treatments would you deem acceptable / worth trying if a ME CFS patient would be requesting MAID as the QoL and symptoms...
That’s unfortunate. But maybe after 6 months something might happen. Hopefully lower cytokinin markers might lead to something for you. What...
Cross posting from Phoenix Rising Post: Survey Self-reported anecdotes different JAK-inhibitors n= 35 - ME patients (incl Long Covid with PEM)...
1. Could be related to Stanford doing a BH4 study with at home cheek swab kit, it plans to enroll 1,000 ME/CFS patients, 1,000 LC patients and 100...
I guess/presume her baseline changed over the years (months) According to Healthy Rising article she was 90% bedbound before treatment started....
So basically what you’re saying is you could: - give a test dose Dara - followed by 1 BIG dose - being more effective 1 High dosage has the same...
Interesting to know is dr. Habets from Germany is also currently doing his mini Long Covid trial n=6 (a bit of a maverick doc, but at least he’s...
Just want to add my comments to these slides as I am impressed (and hopeful) 1. slide RCT 2025? - results Pilot study in Norway n= 10 after 1...
hi @unicorn7 How are you now? Wanted to ask you some questions but I don’t know if you’re still active here
1) I think it’s more subtle. There is continuous PEM but within that you have different Grades of (worse and less) PEM – and than you can get big...
What do you think of this research on T-Cell exhaustion ?...
Just adding the 2nd part from Healy Rising Cort Johnson’s blog on Rinvoq....
Possibly, yes. I do not know enough about these Cytokine panels, but these fringe physicians dó try to research blood panels more in depth vs 99%...
Here is the personal story of the lady that is in remission from Rinvoq. - Came out on Health Rising today Very interesting what she mentions...
My blood tests came back : all markers went through the roof. Had to rush to the hospital.
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