Not a very nice read in the times entitled: Why is Britain now the capital of long covid? https://apple.news/A-Qike_HcTKSHanFINYe3Ig Apparently...
For completeness this is the Patient 1 case summary: Patient 1 : Patient 1 was a woman aged 37 years, who had ME/CFS for 22 years. She...
I've just come across a patent from Fluge and Mella which looks like it was updated/published in March 2021 entitled 'Method for the treatment of...
I had exactly the same experience as you @Forbin from both doses of the Pfizer vaccine. Really bad muscle pain in the injected arm for several...
I’ve just come across this series of videos on YouTube which looks like a group of NHS doctors who have come together and are offering private...
@Grigor - many thanks for contacting Dr Systrom and sharing his email with us. It kind of make sense now that he views the diseases and maybe the...
What I don’t understand is in the table of baseline characteristics they say out of 160 ME/CFS patients, 31% had SFN, 33% had POTS and 22% had...
I may be wrong here but an increase or decrease in mi-RNAs following a post exertional challenge may still be the cause of PEM. It probably takes...
Found it: https://www.nature.com/articles/s41598-020-76438-y The full study title is Profile of circulating microRNAs in myalgic...
I'm not sure if this has any relevance to these findings but didn't Ian Lipkin mention about a problem with iron metabolism/uptake during his CDC...
I sweat excessively and have hyperhidrosis that’s got worse as my ME has progressed. It’s triggered by sitting and standing up and cognitive or...
@Forbin the patchy red rash all over my torso also happened to me twice. Once during my first ME onset aged 11 into mild ME then again preceding...
For those not on twitter some more comments: [MEDIA] [MEDIA] [MEDIA] [MEDIA] [MEDIA]
Henrik has really been vocal on twitter lately after the publication of the nanoneedle paper. I thought I’d put his latest tweet here. Lets hope...
Of course Henrik had to have a say... What exact tools is he referring to? Psychobabble ones? [MEDIA] [MEDIA] [MEDIA]
I’ve had first hand experience with the appalling “service” if you can call it that at Cambs and Peterborough. They pushed the whole fear of...
@Jonathan Edwards while I’m not disputing the fact that prolonged recumbency worsens OI, the idea that pwME should move a little more does not fit...
@Jonathan Edwards - you may find Frans Visser’s and Linda van campen’s work on cardiac output and stroke volume changes during head up tilts in...
This research follows on from Prof Lombardi’s and Prof Kenny De Meirleir’s (KDM) prior collaborative work on the appearance of pDCs in gut...
@Helen - it looks like they’re doing a single dose of 60mg in the trial vs placebo and testing it’s response after the cpet. Maybe during recovery...
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