The test result i saw was from my records. No titer noted, just negative.
Yes!! M.E may or may not be immunological, but MCAS definitely is. M.E may not be autoimmune but POTS often is. I now have a host of co morbid dx...
Of course for those of us with MCAS and M.E, it could be true that we have an immunological dysfunction. Primary MCAS is an immunological disease,...
No- literally just said the lab they were done at and then ‘negative’ all the other tests had reference ranges.
Thank you very much for your response, i appreciate you taking the time. For me personally I no longer have just M.E type symptoms. I also have:...
Interesting....have they given any possible explanation for this? Afrin suggests, in his book, that PWMCAS get all sorts of little anomalies like...
A couple of years ago a test, done at the University Hospital in Brussels, showed low level Anti nuclear antibody positive with a speckled pattern...
Ive spent time on Lupus, MS, thyroid and Lyme boards in an attempt to get to the bottom of my ilness and a lot of people with htose illnesses...
Whoop whoop! If true - great news. I always thought there would be a third who might respond. Do please Jorgen Jelsted's Blog post about it. He...
@Squeezy - sorry im too unwell to reply right now, other than to say my expereince of his testing is good. some treatments are very cheap at...
I will try!
This is a link to what she did http://www.meyou.no/this-is/
There are some treatments available for some PWMS, but a lot of people dont respond to treatment or arent candidates for it. I know a very...
This is a great idea, and much needed. I'm thinking of Fane Mensah and the great work he has been able to do as a PHD student and how grateful i...
Its always interested me how many of us fit the MS subtypes, and have wondered if this is the only extent of our subtyping, with most people...
This fits my pattern too, although my remittings have occasioanlly been quite good, the general trend over 24 years has been of decline. Perhaps...
I would hope that a large enough proportion of them would not. One of the Norwegian patients who had a complete recovery and went back to work as...
Wouldnt that be great - to have a whole army of well advocates with M.E?
Positive outcome from Rituximab/cyclo trials Said positive outcme to be printed on front pages of national newspapers Uk Rituximab study to...
Im just beginning the process of DLA to PIP - will be ringing them tomorrow for the first part. I already feel immensely stressed by it, plus as...
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