Didint Lipkin find pro inflammatory cytokines in PWME? Havent they been found by other researchers? I also have MCAS and inflammatory cytokines...
Not sure i would want to recommend this to my GP before i know what they will be talking about, what approach they will be taking.
Interesting that a few of us felt btter than normal afterwards. Mine then led to a worse than normal, which could have been the exertion of...
I had it done a few years ago before MCAS kicked off. I was absolutely fine. In fact the test was negative, no issues, but i had the most...
Im sorry i cant read through the thread today, but Dr Myhill is having her patients take their temperature up to 15 times a day to see if they...
I literally couldnt wait for my kids to grow up so they could watch this film - its is brilliant, even on the third viewing.
Mr Justy's favourite non subtitled film. Great movie! One of my favourite films of all time is Eternal Sunshine Of The Spotless Mind - not...
Yes, i had a fighting spirit for a number of years, i fundraised, sold my house and traveled abroad three times a year to see a specialist in M.E....
I watched the first Thor movie, but mainly for the brief glimpses of Idris Elba, and quite liked it. I have a 17 year old son, so have been forced...
Great letter - takes a bit of reading and concentration! would love to add my name. Will PM it to you. Personally i think a long list of patient...
I take Ranitidine/Zantac as an H2 inhibitor as i have MCAS. Its the only drug that controls my reflux (PPI's didnt work) so presume my gastric...
Well, one would usually have to have a PHD and be a professor. I think you will find Dr Professor Crawley is both a PHD and a professor, so is...
I noticed that - weird.
Exactly - who did the children inherit it from? other children? It is non sense. Compared to what in adults? First second or third infection?...
'interestingly its much more heritable in children' 'children seem to be more genetically vulnerable, which explains why they get it on their...
Does anyone know where the prevalence data of 1 in a 100 children comes from please?
I changed my vote for Jen Brea as i agree that strategically its the best way to do it. How does the nomination process work? do lots of people...
Given that a large proportion of PWME appear to have the co morbid conditions of either EDS 3 (hypermobile type), or MCAS (Mast cell activation...
That's a great letter, thanks Andy. It's so great to see new advocacy coming out of this forum and people writing letters and just 'doing it'.
2nd egenration antihistamines dont have these effects. You could start with a low histamine diet, vitamin C daily in divided doses and quercetin
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