Is there a thread about the media reports about the guideline quite a few quoting White and now letter in Daily Telegraph from always...
Is the word Graded Activity management mentioned in the new guideline? Bedford fatigue clinic website just changed GET to GAM....
NB the Andrex quilted pack I used has a gold reinforced top. I opened another today, also Andrex quilted and the top is not gold or reinforced so...
Btw I already had a bag that fits over the arm of stairlift to carry up eg hotties, ipad etc, but was looking in vain for another one to put bits...
Thinking it over, a bit worried of talk of legal proceedings if dont follow guidelines as we dont want legal proceedings if docs dont follow the...
LocalME continues on https://groups.io/g/LocalME And ME-letterforce too.
Whoops sorry meant @Louie41
thanks, Linda. I think it helps to raise awareness as well as funds Many longer term than I am, sadly, especially those who got it young.
Thanks so much for asking. Sorry I dont know as first time I have done it but just looked and cant see anything about paypal on the justgiving...
To er … celebrate the 25th anniversary of the fluey virus that soon became severe ME on 27th June and my birthday on 22nd, I am fundraising for ME...
both David Tuller and Brian Hughes demolish the HRA claim as it didnt vindicate the study but I am trying to work out what he means by refuted by...
They are usually asked about life history, history of their career, key moments in between choosing discs, and why they chose it.
Moved from the Psychologising Long Covid thread Just for info, Simon Wessely is on BBC Desert Island discs this week tomorrow 11 am, repeated Fri...
I found it hard to use a laptop lying down as have to reach forward to use the keys. Got a separate keyboard and mouse but hard to negotiate all...
My doc told me yrs ago I needed passive physio and physio came - had to educate her about ME and PEM - but she explained it needs to be done daily...
She took over after Alistair Millar,s appointment in 2010 and the Pace trial had been done and results out in 2011, and after she took over her...
I show it to carers etc and say this girl is not severely affected and can do far more than I can but look how it has effected her.
Frances Ryan has said this before too that you need 'COMPLETE REST' without making it clear it is not complete bedrest without moving a muscle...
there are the very severe patients totally bedbound, and severe unable to use wheelchair but can eg manage to get to loo. So many shades of...
the Moderna vaccine needs -20 - wonder if it will be ok for housebound
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