Yes, it is a possibility. I would only try a place that has been tried and tested profusely by other ME patients though, to lessen the risk. I...
Thank you. Toronto is 6 hours away so it would be a last resort. Maybe see them once and then we could skype afterwards.
I’ve tried every kind of doctor around here and they’re all useless and either want to cure my traumas or get rid of me in some way. So no more....
LDN has been said to help some of us. Nobody will prescribe it to me. They’re all afraid of what the doctor’s association will do to them if...
Yes, and yes ! :-)
For those interested, Action CIND is hosting a free seminar with Dr Alain Moreau, an ME researcher from Ste-Justine Hospital, in Quebec, Canada....
Ha Ha Ha ! We’re on the same boat, Wonko. I thought it looked interesting so I posted it. I’ve never read any article being so concrete about...
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I apologize if it has been posted before. I just read this on Facebook and was wondering if it’s a serious source and if we should get our...
Ha Ha Ha ! Maybe not a hero, but certainly a desperate human being... My life feels like it has no purpose. This helps me stay alive,
Always glad to help with any ME study I can get into ! -) The sleep problems were probably a mix of tired but wired and insomnia, my usual...
I am part of this study. I had the cuff test done but I don’t clearly remember my answers to the afterwards questionnaire. I remember I had...
Does anyone have the link to register for the live stream ?
You have done tremendous work. Thank you for your time and dedication. I wish you the best.
@arewenearlythereyet thank you, I appreciate the feedback and understanding. Weighing the pros and cons is a good way to go. @andypants do you...
It’s hard to explain but I feel like I’m not « ill enough » to deserve sympathy because I can still walk. I am afraid of people judging me...
Wow, so much great information, thank you for all your replies ! I wanted to reply with multi-quote with sections of everyone’s comments but I...
@Wonko there is a lot of valuable input in your post. That’s exactly what I was hoping for, meaning honest life experience. Thank you. I agree...
Thanks ! I was having trouble expressing my thoughts.
For the past months, my condition has deteriorated. And for the past 3-4 weeks, I don’t know what I can and can’t do anymore. I have no way of...
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