@TrixieStix What is DSPD ? I am sorry about your loved ones, N24 sounds awful... :-(
Thanks a lot ! I have been reading about that a little bit lately but didn’t realize it was actually a sleep disorder. I will definitely read...
Yes, I am still using Nimotop. I am unfortunately on a downward slope but Nimotop is helping me not go down as fast. I have been taking it for...
That made me cry. I am so depressed from this terrible outcome.
I started Abilify a few weeks ago and it seems to be helping with depression/anxiety, which it was prescribed for, but I think it might be helping...
Make a journal of your migraines : date, time, duration and severity. Give him the paper without saying anything besides : here is a journal of...
@JaimeS I started feeling mild symptoms in 2013, but really got ill in 2015, so about 3 years ago now.
And then it got better ? Same but different ? Worse ?
I’m at my worse every morning. Up to about 12 o’clock or so. Then I have a little more energy until the end of the afternoon, unless I have to...
It is appaling and revolting that we have to resort to such treatment to prove disability. The risk of making us more ill is real, and this...
Yes, I am part of this study. This machine is like a BP cuff. For about an hour or so, maybe 2, I can’t remember, it inflates and squeezes your...
I am part of Dr Moreau’s clinical study. I’ve had this done. I seriously doubt that it gave me anything vaguely resembling PEM. Or if it did,...
@Wonko why blue cardigans ? Inside joke ?
The 2 day CPET test is the most risky test anyone with ME could ever do. As I’ve said in another thread, it took me 6 weeks to go back to...
Illness is “maladie”, and when you’re ill you’re “malade”. Malaise is pretty much as you describe it. A general, unspecified unwell feeling,...
I am impaired in all 3 categories. My VO2 max is between 60%-75% of normal values. There were 8 different anomalies found, some of which were...
@Wonko thank you for contributing to this thread. It is very informative and since this is rarely discussed, I am sure it will help others. I do...
@Wonko maybe the anti-convulsion medication would help you if this is disrupting your life too much. Have you seen a specialist ?
Well, I am glad you posted this because I think it happened to me as I was leaving to go back home. Dr Hyde was in my car, and told me to go to...
While going to Dr Hyde’s office today, I had a visual hallucination. I was going 120km/h on the highway and saw a female deer running towards me,...
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