Also in the article, people's weight blamed as the cause of all kinds of health problems. I've seen a number of articles on various medical...
Still, and again! It seems reassurance and/or dismissiveness are often the first things that spring to the lips. Yes, basic neurological...
If only we could pick the right lottery numbers with our thoughts! ;)
Thanks for this @Adam pwme At first look, this is very interesting for pwME. EBV plays at least a part in causing some ME. It did for me. Some...
To paraphrase, the researchers are saying little is known about LC, but there are no "Serious Adverse Events" expected by putting study subjects...
First off, it appears they are dismissing biomedical care for people with more than one physical illness. Or, they are promoting adding psych care...
I very much agree - backup, that's one important thing doctors want. Government documents are good. Institutions with good/big reputations are...
Absolutely! It would be great to see comparisons of many groups such as ME, COVID, MS, FM, Chronic Lyme Disease (if I have the term right) and...
I very much hope that with the similarities between these 2 groups, our community does benefit. That has been the hope and understanding. I don't...
I am concerned that despite the huge amount of research and money being poured into many aspects of COVID, ME may still be left out in the cold....
This also begs the question, why can't this sort of research be more aggressively or earnestly addressed for ME? Oh yeah, I know why....
@Milo Thanks for your comments. However, I do understand the roles for these agencies. Of course these agencies are mandated to report on public...
Not directly messing with scientific evidence, but some political leaders in Canada have removed all public health measures except vaccinations....
I forgot an incident that three people around me reminded me I played a major role in. Nothing problematic or anything like that about the event,...
Another problem with communication between pwME and physicians is some pwME have slowed thinking. Cognitive problems also cause memory issues, and...
When your stigmatizing "cfs" diagnosis goes before you, in a letter from your GP's office to specialists' offices, you're often hooped before you...
@Samuel I very, strongly disagree with the misleading, dismissive misnomer "chronic fatigue syndrome". It's caused immeasurable harm and...
"trouble being understood". I would add, physicians and others have trouble relating to the symptom descriptions. This is even though most...
I heard a bit of a CBC Radio interview with a physician with LC. She is very unwell, and unable to work. I know it's early days, but still...
Despite multiple positive tests, indicating repeated current EBV infections, as well as other repeated, and confirmed infections, pwME are viewed...
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