Great news. But for long term pwME, or maybe I'm just speaking for myself, after being booted around by many, along with suffering from this...
Very much agreed, @Solstice. "A better return on investment", absolutely! Instead of the disability insurance industry treating most claimants...
This is a memorable example @Peter Trewhitt. Amazing your friend got through this physically. But what an ordeal! If only someone had believed...
Also, as above, imagine all the hell that supposed pwMUS has gone through with the disability insurance industry, government assistance programs,...
Yes, @rvallee you speak the brutal truth. Imagine someone denied more expensive testing, because it's assumed they are a MUS person. Now imagine...
One thing I'm left wondering about is the second fellow with multiple system atrophy. It didn't sound like there is any treatment for this, just...
"Well, this theory must be right, it uses an impressive word salad." :wtf::banghead::grumpy:
Thank you for posting this @Dolphin. I read Osler's Web. Excellent book. I'm really looking forward to reading Hillary Johnson's new book! A...
Both sides of neck. Left often the more swollen side. ME since 1985 on. Still get painful neck, armpit and groin lymph nodes.
@Peter Trewhitt @hellytheelephant I spent decades and lots of money trying to recover, or improve substantially. Always chasing the dream of...
Possibly not a good fit here but this is an example I've seen: more senior healthy people placing the usual demands and expectations on pwME just...
I've not tried Qi Gong, but a more exacting yoga, ( I can't recall the name) left me really exhausted and very sore. (This wasn't your modern day...
Thank you @dave30th for your continued great articles! I agree with Lady Shambles comments regarding the concern ME will ultimately be left out...
Oh my! Where does one start?!!! I've come across people who say they've recovered from ME, but with a bit more digging I find out they have to...
Absolutely, yes. I recall, the psychologist I saw over 30 years ago, felt very strongly that "cfs" was a mental health issue caused by a...
@Wonko A serious topic. Frustrating to have this, and zilch medical help. But your sandwich comment made me chuckle! There are no sandwich icons...
Yup. Been working on my ferritin level, which was low. RLS was quite bothersome, especially later in the day. With more iron intake my RLS has...
Another thought about being called Type A by that psych of long ago: here I was with an OK career, with one degree, being aggressively accused by...
When I was first diagnosed in the early 1990s, a psychologist told me I have a type A personality and that's why I had "cfs". Type A people as...
My POTS was much worse with ferritin deficiency. And I had many premature heart beats, if that's the correct term. Interesting, my hemoglobin was...
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