IMO, EBV needs to be taken more seriously. It seems it's another disease that has been dismissed as of little consequence. Laughed off as the...
Agreed. We may be seen as withdrawing, but I would say we are withdrawn. Withdrawn by ME. There of course, is in some cases the decision to...
LC is just part and parcel of a normal working adult's life is the same old argument as it was, and still is with ME. How about at least being...
Thank you @Jonathan Edwards. The problem I've encountered with 3 various surgeries, is that the medical staff work for quite a while to get any...
I agree. I was told to drink juice first before a surgery that I had 6 years ago. I'm going soon for another surgery, and I was told no food or...
My blood draws sound somewhat familiar to yours, @Ravn, but without the clots. They have usually/most often been difficult. First to find a vein...
That is very interesting @Binkie4 that you feel better with heparin. It's my recall that David Berg's theory recommended heparin as a therapy....
If I have this right, this article is basically about viscous blood and microclots. It looks like it's coming from a different angle - some...
I like yoga. And, used to do it. But, it seems to be BPSy. Or, BPS-like. I never delved into it that far, but knew someone who did. They thought...
:laugh::thumbup::)
Random bits: Some pwME may have pathology show up on MRI brain scans many years into their disease. These brain scans may, or quite likely will...
FND. This diagnosis is given after a very thorough work up including an MRI brain scan, and other very extensive testing, right? ;):(:banghead:
Thanks for this @Mattie. You can also diagnose POTS with a Holter monitor. The physician asks the patient to keep a diary of activities while...
Absolutely agreed @Trish and @Arnie Pye. How about being logical? For groups with less stigma, little to no medical gaslighting, good health,...
And, Holter monitor testing. This may indicate notable heart rate differences with position of the patient: supine vs upright. While wearing the...
Testing for POTS doesn't seem to have been included. Nor has tilt table, impedance cardiograph, and maybe 2 Day CPET could be considered....
Thank you @Trish for your summary of this disturbing, and highly questionable "training". That is to say the very least about this movement. I...
Thank you for this posting @Sly Saint, and for the highlights, @Hutan. From the article: "ME/CFS may move from the rare disease category to a...
Your experience sounds familiar. I've had elevated monocytes, and consistently elevated lymphocytes for several years. Also, active/fresh EBV...
Exactly @Binkie4, well said. And, this applies to everything I do, even when it's just washing the dishes. Which for myself, and doubtless others...
Separate names with a comma.
