Weirdly, I found since getting LC they I miss words and/or letters out when speaking, typing or hand writing. The above examples @It's M.E. Linda...
Much like if you do what you have always done you will get what you have always got. Which seems to be what they are aiming for... ?
This explains so much.. :rolleyes:
Very well put. except it feels like the people in these fields seem to want to make it so, which might be a large part of the problem. The wish...
Agreed. Surely all other possibilities should be ruled out....?? This is like going to a doctor having a sore leg and the doctor saying "exercise...
This. Exactly this. Thank you for voicing my thoughts on this so perfectly @Kitty
Seconded, really excellent work. "patient as the receiver of the clinician's wisdom. It assumes that clinician input makes a significant...
Apologies, I did not mean to suggest that you, specifically were; I am extremely concerned about the FND mission creep. This. The FND diagnosis...
Thank you for the clarification @Jonathan Edwards and apologies for rushing to judgement. If this diagnosis is helpful to some people, does it...
I have just looked up this thread, and am physically shaking with anger at this whole FND approach. This. Questions need asking, very firmly....
I love your descriptions @Kitty I am stealing this; as it sounds like something a Victorian gentleman would say before slapping someone with a...
Thanks @Hutan again, clarification appreciated. :thumbup:I am never quite sure how I come across so wasn't sure if this was helpful or a bit ranty!
Thanks for the clarification @Trish that is helpful and somewhat frustrating Quite. This seems to be a common problem. The DWP 's Back to Work...
this is a really good idea It would also act as way of comparing ME subtypes and demonstrate fluctuations over time / life times between...
Bolding mine What transpired seems to be the opposite. My reading of this that it was to be a co production, foregrounding the patient...
Thank you for sharing these comments @bobbler they really resonated with me. I have found myself thinking about this all morning, as they have...
This sounds like a really great proposal @Trish I use a bullet journal and there seems a large chronic illness subsection of that community I...
Yes, exactly. We need some way of communicating that awful reality. Even talking to people like our MP, who is really supportive and we have...
I agree, it doesn't entirely capture my reality, but find it is useful to be able to say I have about 30% functional capacity on a standardised...
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