This. I find it completely unfathomable. I also cannot understand the blatant and glaring contradiction between dismissing us when we say your...
Haven't they made this part if it though? They make us unreliable narrators to our own experiences and try to convince us that the fact we don't...
We've got one! https://thesciencebit.net/
In all honesty, I don't have a plan. Yet. At present it is just thinking, defining the problem, asking some questions and gathering information....
I would add to this: Tainted blood Vaginal mesh AIDS Hillsborough Post Office Tavistock Clinic? There is a culture of disbelief and patient /...
This post has been copied from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023...
A more serious version of my earlier post to join the dots I currently see: Culture of disbelief (Govt & healthcare): only see through the lens...
Oh. I see! Apologies, totally misunderstood the question(s). If i have understood correctly, we want to find out: • is there any kind of...
FowardME is a discussion forum for various ME groups, as opposed to any kind of coalition with staff to take any action. While we would all...
This topic has been split from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023...
I was also starting to think that there are a number of strands that seem to be knitting together, so I am grateful for someone else saying it out...
This is really well summarised; they are attempting to rehab people with an ongoing, untreated illness. Where else would this happen? How is is...
This is utterly unforgivable and is the exact opposite of the hippocratic oath. The mental gymnastics that they must have to go through to get to...
I respectfully disagree. TW: I started to hyperventilate when I was turning blue and pretty much dying with pneumonia and double pleurisy 16...
at a cost of £90k How much is a fully funded PhD? or a clinical trial? or even a pilot study? or even collecting wearables data from volunteers?
I was reading this and thinking that it is actually a helpful idea, as someone who lives with PTSD and other MH issues from the multiple things...
So... All the things ME robs us of, her company can give us back through That is the most "jolly hockey sticks" way of describing CBT+GET I...
I have always had mild anxiety and it would on occasion upset my stomach - it had a very specific trigger for me so wasn't a major issue. Then I...
Excellent article. The additional issue we face is that sharing articles such as this or the excellent Long Covid Advocacy 3 part series:...
How are we supposed to push back on any of this?
Separate names with a comma.
