I have been involved in this on behalf of MELN (ME Local Groups Network) along with Long Covid Support and #ThereForME New survey: Help inform...
LBC are running a story today about there potentially being more benefits cuts in the autumn statement...
Thanks all..I didn't even get a care assessment; I called them (twice) and got told not their problem and fobbed off onto a social prescriber, who...
Social care told me by phone that if I could shower and wipe my bum I wasn't their problem, so I have had to pay for a carer out of my PIP as I...
@Suffolkres Apologies, I was unable to attend as I had an appointment. I hope you found it useful.
@Suffolkres MELN's next meeting is on Friday 4th April. if you email our admin on melocalnetwork@gmail.com they can send you a copy of the agenda...
12.30pm Tuesday 18th Liz Kendall will give her speech. The Green paper will be published as soon as she stands up.
Current book is Unheard: The Medical Practice of Silencing by Rageshri Dhairyawan which is 99p on Kindle currently for anyone who wants to join in
Scandal of the sick: Ill and disabled benefit claimants die waiting for vital payments...
https://archive.ph/2025.03.10-091457/https://www.thetimes.com/uk/politics/article/labour-mps-highlight-moral-duty-to-get-long-term-sick-into-work-s...
Interestingly, when I saw my local clinic for a previous referral eight years ago, I told them about Physios for ME and suggested they might want...
I'm glad my experience is helpful to you. It's was not at all clear. I am educated to post-graduate level, had the B&W guide and an intelligent...
I find this extremely worrying..why do they need to check bank accounts? Why do they want to know what I am spending my money on? What right have...
Glad it was helpful. I did get completely overwhelmed for a month, as the "right date" within the 3 months was complicated by my transfer being...
I went through it in December/January and didn't have any other contact than via the online journal. I did not have to go to or even speak to the...
Thank you
Very well said @Trish I found your comments incredibly validating..it is hard not wonder if it is me at this point - and I just need to try...
"He didn’t doubt the virus had triggered the fatigue but felt he had later become caught in a vicious cycle of illness driven by his fear. Viruses...
Isn't that the definition of narcissism; to believe that reality and the truth are maleable to one's own ends?
This is utter madness. Why on earth are they giving with one hand and taking away with another. I'm sorry that you have had to deal with that...
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