1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 21st April 2025 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Search Results

Search Again
Page 13 of 14
  1. JellyBabyKid
    Post

    DecodeME - UK ME/CFS DNA study underway

    Thank you :thumbup:
    Post by: JellyBabyKid, Jun 23, 2020 in forum: ME/CFS research news
  2. JellyBabyKid
    Post

    DecodeME - UK ME/CFS DNA study underway

    That's great, thank you :thumbup:
    Post by: JellyBabyKid, Jun 23, 2020 in forum: ME/CFS research news
  3. JellyBabyKid
    Post

    DecodeME - UK ME/CFS DNA study underway

    This took me to a tweet...
    Post by: JellyBabyKid, Jun 23, 2020 in forum: ME/CFS research news
  4. JellyBabyKid
    Post

    DecodeME - UK ME/CFS DNA study underway

    Can someone post Tom Whipple's piece? I have maxed out my 2 free articles. Thanks.
    Post by: JellyBabyKid, Jun 23, 2020 in forum: ME/CFS research news
  5. JellyBabyKid
    Post

    Editorial: Transcutaneous electrical nerve stimulation (TENS) for chronic pain: the opportunity to begin again : Travers, Eccleston et al Apr 2020

    I love my TENS machine and find it has been incredibly helpful. Physio who originally suggested it (for chronic post operative pain, not ME)...
    Post by: JellyBabyKid, May 23, 2020 in forum: 'Conditions related to ME/CFS' news and research
  6. JellyBabyKid
    Post

    How to explain the 'fatigue' of ME/CFS to non-sufferers - comparisons they could understand

    Yes! THIS and when you wake up you actually feel worse
    Post by: JellyBabyKid, Feb 20, 2020 in forum: Post-Exertional malaise and fatigue
  7. JellyBabyKid
    Post

    UK Action: Ask CCGs to buy MEA Purple Books for GP Surgeries

    Thank you @Invisible Woman . Glad to know i was making some sense! Excellent point about seeing GP's - I shall try and remember to make this...
    Post by: JellyBabyKid, Feb 17, 2020 in forum: Advocacy Action Alerts
  8. JellyBabyKid
    Post

    UK Action: Ask CCGs to buy MEA Purple Books for GP Surgeries

    I can totally understand that, and my GPs are clearly drowning in work, but I find it frustrating that once again ME comes bottom of the pile and...
    Post by: JellyBabyKid, Feb 16, 2020 in forum: Advocacy Action Alerts
  9. JellyBabyKid
    Post

    UK Action: Ask CCGs to buy MEA Purple Books for GP Surgeries

    I actually did this and got the ME Association to send a copy to my Practice. One GP told me he was too busy to read it and another said it was...
    Post by: JellyBabyKid, Feb 4, 2020 in forum: Advocacy Action Alerts
  10. JellyBabyKid
    Post

    UK: Mentally ill 'spend months on hidden waiting list'

    This was also reported on Radio 4 Today and the NHS representative advised the these "hidden" waiting lists are published regularly and that the...
    Post by: JellyBabyKid, Dec 5, 2019 in forum: Other health news and research
  11. JellyBabyKid
    Post

    BBC programme You and Yours: Are you dependent on prescribed painkillers?

    I haven't listened to this yet but I will as I find the all or nothing approach to some of these drugs frustrating. After surgery I refused to...
    Post by: JellyBabyKid, Sep 10, 2019 in forum: Pain and Inflammation
  12. JellyBabyKid
    Post

    Upcoming book: CLASSIC PACING - For a better life with ME

    For those who don't do/like pacing; what management strategy - if any - do you apply? Genuinely curious as to how different people manage their...
    Post by: JellyBabyKid, Sep 2, 2019 in forum: Monitoring and pacing
  13. JellyBabyKid
    Post

    Upcoming book: CLASSIC PACING - For a better life with ME

    I've just bought a copy of this. Am having a quick skim read before a proper in depth study but so far it has a wealth of information and seems to...
    Post by: JellyBabyKid, Aug 7, 2019 in forum: Monitoring and pacing
  14. JellyBabyKid
    Post

    Activity baseline vs activity ceiling, why concepts and language matter

    I had it suggested to me that "finding one's edges" might be better than boom&bust. Quite like it.
    Post by: JellyBabyKid, Aug 2, 2019 in forum: General ME/CFS news
  15. JellyBabyKid
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Oh :thumbup: thank you :)
    Post by: JellyBabyKid, Jul 30, 2019 in forum: General Advocacy Discussions
  16. JellyBabyKid
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    What report is this please? And why is MS worried about it?
    Post by: JellyBabyKid, Jul 30, 2019 in forum: General Advocacy Discussions
  17. JellyBabyKid
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    This is excellent ; please can you send it to the guardian editor and strongly suggest that they publish it?!
    Post by: JellyBabyKid, Jul 28, 2019 in forum: General Advocacy Discussions
  18. JellyBabyKid
    Post

    Poll: Gastrointestinal symptoms

    I had IBS before I got ME but ME made it So. Much. Worse. so I don't quite fit any of the above. However I saw a fantastic dietitian* who...
    Post by: JellyBabyKid, Jun 30, 2019 in forum: Gastrointestinal and Urinary
  19. JellyBabyKid
    Post

    UK Parliament debate - 10 Years of the Work Capability Assesment 24 April 2019

    Myself and @It's M.E. Linda have been in touch with our MP about ME since before the debate and were the source of his quote about it in this...
    Post by: JellyBabyKid, Apr 28, 2019 in forum: Work, Finances and Disability Insurance
  20. JellyBabyKid
    Post

    Article: The alarming hijacking of the BioPsychoSocial model

    I have been prescribed Venlafaxine and Pregabalin. I was totally unable to tolerate the latter and while the former helped with depression the...
    Post by: JellyBabyKid, Apr 28, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
Showing results 241 to 260 of 278 Next >
Search Again
Page 13 of 14