This is super helpful, thank you. I have shared it with MEA, AfME and the Disability Benefits Consortium coordinator as well as my local group...
Thank you :thumbup:
Apologies if this is actually a blindingly obvious question, but I have spent too much time reading various people's thoughts about this whole...
if you are anything like me it is more of an uneasy truce from necessity
I am sorry we have given you the idea that hope is gone. I spoke to a friend this morning who said that there is reason to be optimistic, but we...
For me it is a case of hope for the best but plan for the worst. I have been sick for 15 years. This year marks the 10th anniversary of my...
A random hard copy survey turned up in the post today
That's what I thought. Does sod all for the ringing, but you get much better in filling in questionnaires the way we want you to :banghead:
I am very grateful for this thread. It really resonates with me so much. I had the same realisation recently; the cavalry aren't coming. I am...
Hard copy received (after being chased on Thursday!)
Never hurts to ask...? [MEDIA] [MEDIA]
Yes. Me. I score every morning immediately on waking and record symptoms every night. I recently added to which symptoms I track. I also message...
Thank you @Adam pwme . Blimey that was a mixed bago_O
@Andy This is massively helpful, thank you very much! :thumbup: I was trying to get to a simple set of instructions, but currently very foggy...
Thank you. Twitter is - understandably - getting a bit concerned about what all this means for the process. Especially that cannot access the...
Seriously?! Surely this is something they do fairly regularly? Concerning that working group members are tweeting very publicly about not having...
This makes me feel physically sick. What happened to going into medicine to help people? Or learning by 'standing on the shoulders of giants?'...
Can I ask which book? This has already been covered? Thanks! Gez Medinger and Danny Altman covered the ME situation really well in the Long...
I wrote to complain about this week's incident. I didn't hear the previous one.
Done. They may regret asking, as I completed while fully PEM and more than a little grumpy "What improvements would you most like to see to the...
Separate names with a comma.
