I wasn't aware that the MEA produced a disability scale. I use the Functional Ability Scale that Action for ME produced a lot...
This. Also much screaming at articles when I read about "dealing with worry" and get the super helpful advice to give yourself 15mins and then...
THIS. This really gets to me; other people being able to make choices that affect our lives and have no consequences for them. Worse, that this...
Not an ME/CFS book but The Long Covid Handbook by Danny Altmann and Gez Medinger has some of the history of ME, covers management strategies and...
This. I find this a very bitter pill to swallow. It makes me so very angry that my life has and choices have been taken away because of this...
I don't doubt the S4ME squad, if anyone has the spoons to write, I'm sure it will be polite and factually accurate. I am however deeply cynical...
While justified, would this be playing into his victim persona and persecution complex about us vexatious, militant patient activists?
Moved post Slightly off topic - apologies to the mods - but an article below was interesting too:...
I find i can't get close enough to the worktop with a high stool, so end up at a weird angle and keep having to get up to the cooker, sink etc....
I claim my prize; IBS is on that list I've had CBT for my IBS on a group course. By the last session we had stopped taking it seriously and had...
I was due an ESA reassessment in 2021 it magically got extended, without telling me, but they couldn't tell me how long for. When my MPs office...
Random thought: The government NEVER move this fast; If they have produced a response to the Work Capability Assessment: Activities and...
This. I was mild-moderate until the DWP repeatedly told me I was fit for work - having had to leave my career due to severe health issues, even...
This is absolutely insane.
Announced yesterday on the DWP page of gov.uk; Back to work boost for disability benefit claimants as ground-breaking employment scheme expanded...
Maybe they are in need of CBT to deal with their false usefulness beliefs...?
From George Monbiot's article, linked in the tweet in this post "Fiona Fox is also the director of the Science Media Centre, the public relations...
"The only thing necessary for evil to triumph in the world is that the good do nothing" I cannot in good conscience stand by and not respond to...
You can also email your response to: wcaactivitiesanddescriptors.consultation@dwp.gov.uk which is what I am currently working on, at great...
I have had this a couple of times thanks to the addition of Long Covid to my ME. It is truly terrifying as my vision gradual turned into a...
Separate names with a comma.
