It's not just shifting from horizontal to vertical. The tilt table test takes away your coping mechanisms. You're not allowed to wriggle your...
Great summaries. Really helpful. Maybe you could repeat the notes from the first post, now and then. I would like to see more, in the speed of...
Drawing a picture because a GP does not understand words? Maybe educating the GP would help.
In the last century I tried my own pacing up/GET, more pwME friendly. My first attempt on a normal bike got me stranded after 400 m on a very...
In my opinion you are completely right about this. Psychiatry and psychology don't study chronic fatigue syndrome, they just study fatigue. They...
This could explain why I went from last year uni student to having what I would even call a learning disability.
Am I reading this right? Fatigue 7%, distress 11%. And the other "symptom" being female accounts for the rest of 42 %? Can someone help this...
I already use metformin for diabetes II and it does nothing special for me in PEM. My PEM is sore muscles, more fatigue and more brainfog, no flu...
Thanks Trish! I think my problem is low blood volume and that's why I keep rehydrating. I thought I drank 2 liters a day, but after remeasuring...
Maybe better not to give a grant to "researchers" that can't even get the name of a disease right. Not CFS/ME, folks, it's called ME/CFS.
It's the patients asking for a referral. GP's don't know anything about ME/CFS. Even a chronic fatigue "specialist" I met didn't know these...
Thanks for your deep diving into all of those data @forestglip. Could hypoxia be a common factor in all those hypoxanthine findings?
Looks better than the Lifelines they wanted to use before (Rosmalen). What a pity that I'm too old to participate. 18 - 65 years.
Yes. "Existing randomized controlled trials and systematic reviews, which conclude insufficient or low-quality evidence of effectiveness". Last...
Hot AIR?
Prior to my appointment with researchers in The Netherlands I was asked to do a N 2(pictures) back N 3 back test over a 3 week period, on-line, at...
Thanks Nightsong for posting and @dave30th for the excellant blog. BMJ must really like your writings they keep coming back for seconds,...
What would your own n=1 answer be to your question?
Could you explain what you mean by more established longer duration non-LC-ME/CFS?
Thanks for the warning. Venous oxygenation caught my attention. I'd love to learn more about that. I do remember though a bold signal turning into...
Separate names with a comma.
