Maybe going a bit off topic but I’ve been interested in how significant my response was to the covid-19 vaccines and often wondered if there is...
Thank you @Yann04 and @Wyva for sharing your memories, and the link! It looks interesting, I'll listen later. Some questions/thoughts. I'm not...
One thing I’ve particularly enjoyed is papers which I’ve gone off and learned about the background and science involved in more detail. It can...
Time for some more wild conjecture from someone with no medical training and little understanding… Maybe all people with a susceptibility to...
I’ll try and do the more formal structure as this looks useful, but it came to me that PEM for me is perhaps described best more poetically…...
Having it public would be a really useful resource
Agree, those with the biggest financial incentives to do the right thing and follow the science and get people vaccinated (amongst loads of other...
It would be good to get the thoughts of someone a bit more familiar with this sort of study. The numbers look quite low for getting much useful...
Maybe for mild/moderate people the compensatory mechanism for whatever is going on elsewhere is working while in severe it’s not or has stopped or...
I’d hoped any drug trials we saw in the UK would have been done by people who cared about or at least understood ME/CFS. This all looks very...
Dr Jacqueline Cliff Has been doing the HHV-6 reactivation study which is ongoing...
Yes, limited space but recording available after. This from an email I received
To me uncertainty and partial information and things we as patients need to find ways to be comfortable with. If there’s anything we know about...
Presumably makes them feel a bit woolly?
Absolutely. The more I learn about biology the more you can see it using fundamental chemistry and physics, not just the ‘simple’ stuff but...
The way I suppose I would probably think about it is a complex circuit with lots of different electrical pathways/tracks and switches and...
Oh that’s interesting @Yann04 the whole MCAS thing is something I’ve been interested in learning more about. Thanks @forestglip that’s really...
I’d have difficulty answering a ‘first night’ question. I can’t be that fine grained really. I would say that I have a mixture of all of these...
Setup a scientific panel of people like Jonathan and Chris and have patients chosen from this forum by vote as patient representatives. Get Sonya...
Given the link on their website (on an older article from 2023) to book a test, which seems linked to a US firm which runs private medical centres...
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