They seem to be implying there could be more than correlation as there are ‘implicated metabolic biomarkers’. Although we don’t know what those...
Link to the zoom has been emailed and posted on their facebook page
I share many of your concerns, but hope you are wrong. And I do think making a strong case that they would be throwing good money after bad could...
Sounds interesting. I wonder how much the difference is the VR or just the quality of the underlying teaching materials?
Well put. I wonder if a push for reform rather the usual ‘give us more money’ message would actually be better received by ministers too.
It’s probably not that surprising in some ways. A lot of the ThereForME people are relatively new to this area. When I was first ill a decade...
Can we get a grant to run a double blind randomised control trial into that?
This is really well put. I might add the inverse too. For example I sometimes get bad migraines I didn’t get before ME, but you know what, I...
Pretty sure they do. I’ve seen pet activity monitors. And there seems to be a growing number of pets being prescribed antidepressants too…
For comparison I checked the last ongoing symptom tracking I did which was for a 6 month long HHV-6 study with the CureME team. It had a dozen...
That’s a very good point, thanks for reinforcing it. I’d add that the problems people with ME generally have with NHS is not a lack of admin.
I stopped tracking symptoms. It was a lot of work. I learnt a bit but it’s easy to get too focussed on things. A little light weight monitoring...
This is what I was thinking. Are they verifying that the data is similar in structure or content to the data they got before? That it matches...
I was interested that they’re only looking for a limited number (250) of surveys to be completed to check if the “revised version provides the...
This is the first time I’ve come across ‘Persistent Long Covid’ as a term. When people are prefixing an existing term with more synonyms, that...
Thanks @Sasha and for your looking for solutions. Certainly older people are dealt with differently I feel. I was in my 30s and looked like a fit...
Except if money is put in without those within the system giving up what they’ve been protecting and admitting they need to change, then nothing...
I wish I knew. I’ve asked myself the same question many times, tried many things but failed. Sorry to not be more positive. When I was initially...
It feels like we’re trying to solve two different problems with two different tests. One is to help with what has gone wrong within our bodies....
They seem to be referencing quite a wide range of studies into both animals and humans over a wide time period. No doubt there’s lots of differing...
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