Interesting, I can’t read the whole article but I wonder if they are already or how long it will be until we do get into the good v bad bacteria...
Link to watch and download the video. https://bit.ly/4didHTK I’ve not listened yet but from a skip through it has detailed presentations from...
That’s a good explanation of something that I recently realised seems prevalent and involved in many of the problems we see. Saying ‘I don’t...
Good to see (As many will, I have family with Parkinson’s). As an aside It’s interesting to see direct quotes there from Parkinson’s UK’s...
It all sounds very press release-y if you see what I mean? Hopefully there’s something meaningful underneath it all. This page was shared in...
I’m not sure how current this is (it’s from 2021) but I also found this...
Wholeheartedly agree. Research could become an easy decision if DecodeME shows us where to look. So maybe some preparation for that, get...
I tend to be more in the having trouble eating or eating enough category when I’m bad. When appetite and ability to eat returns it’s generally a...
In my experience CBT is very good for some things. But is also sometimes used as a term for therapy which isn’t actually CBT. And also used...
This was exactly my experience. A good bunch who were keen to try to find out what was wrong, especially given my history and how my ME started....
I’d agree that’s a really good approach. It nicely opens the door to showing how good quality research and education is a solution too.
Copied post I want good research to find treatments and until then that to ensure day to day care for other issues and any emergencies is...
I want good research to find treatments and until then that to ensure day to day care for other issues and any emergencies is delivered in a way...
I’d like to see something along these lines as more of a focus from patient groups and charities. I don’t disagree Jonathan. I’m not trying to...
I think I’d probably start with how much I got wrong when first ill and how little I knew. About how so many of my assumptions and to be honest...
It’s a really tough one and ultimately I think people’s view on the topic will of course be hugely influenced by their own life experiences and...
The more positive argument here is that in getting a broad church to agree you can focus on raising awareness rather than disagreements. If you...
If it helps I recently emailed my MP and kept it very simple… Now you’re in government what do you plan to do to improve healthcare, social care...
That seems… significant. I hadn’t heard this, thanks for sharing the information.
This is the big question to me which raises serious questions of some work being done currently. We have the NICE definitions. And yet people...
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