Yes I completely get what you're saying. It's very interesting the similarities and differences in experience. FWIW I have a lot of autistic...
With respect, and not to minimise your experience at all, but I had very similar experiences of constant conditioning to perform 'masculinity' I...
That's entirely understandable. I wasn't expecting a phase 3 but this does look like a rehash of the pilot to me, rather than a step up.
I suppose so. I just want this drug tested thoroughly and as fast in terms of potentially getting it out to patients (if it works) as reasonably...
No mention of blinding or placebo, and only ten pateints again? Disappointing imo.
Yep also same!
As someone with quite severe cognitive PEM, the thing that most reliably triggers it is keeping track of mutiple variables at once. So for...
The efgartigimod trial had a symptom questionnaire as an outcome (compass?) that many POTS patients say is not a good measurement for the...
Does Daratumumab also affect T cells etc? Or if that has a positive effect can we narrow down what is potentially being affected?
If IgG only lasts 100 days, how would lowering it cause the sort of long term remissions that were reported in the cyclo trial? Hypothetically...
Efgartigimod also lowers IgG I believe...
I am really interested in whether the efgartigimod trials failed because they used a very restrictive POTS measurement. A lot of participants...
If the science does not 'come through' for us, what do we have really? Mild people might have a positive response to mestinon or ldn and go back...
This conference should have a keynote speech on what went on with PACE. Perhaps in five or ten years conferences like this will do.
As someone who Is diagnosed with generalized anxiety disorder, I can see both sides of this argument. I was diagnosed by a gp age 19 because I...
Oh and very impressed that the samples were from severe patients, very sensible!
Also I just want to say that to my layman's eye this 3d muscle stuff looks very impressive. If as @wigglethemouse quotes Morten here, the follow...
To clarify I was referring to this post, in which Murph had been in contact with the author by email
Had this feeling last night and this morning, first time in a couple months. Absolutely unbearable.
I think a lot of this is down to funding. If there were similar funding to other conditions, people would be much less opposed to semi random drug...
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