I had undiagnosed ME for three and a half years BEFORE I became convinced that the fatigue was partly psychological. I was convinced I was...
My birthday is coming up and I'm wondering what you lot think the best charity would be to ask my loved ones to donate to - the ME association?...
What we need is physicians like this sticking their necks out and publically countering this narrative in the media and among their colleagues...
Thank you. And I agree. More professionals need to challenge these narratives so the public can see it isn't a universal view.
My heart sank when I saw his name. Very disappointed in The Atlantic for publishing him. The worst thing is that every time I read something like...
https://www.theatlantic.com/ideas/archive/2022/10/long-post-covid-symptoms-mild-cases/670469/ The Atlantic hedging it's bets after the brilliant...
Yes I worry about that. I could not tell the difference when mild and undiagnosed and jogged/worked myself into a moderate and largely housebound...
I completed the study today and wasn't chosen to take part. It is quite disappointing on an emotional level even if intellectually I entirely...
Slow brain day here too!
Just to clarify I absolutely encourage everyone to take part, in case that wasn't clear.
My only concern is that by excluding people with common co morbidities (if that is indeed what is occuring), is there not a chance that Decode...
About bloody time!
Folk psychology becoming increasingly more deranged...
I agree with a lot of what you're saying here, but just to clarify I meant that we as ME patients might do better to counter the 'whiny negative...
I wonder if this might not be approached as a teachable moment in regards to why people with ME tend to have a more bleak outlook than suffers of...
I found this article a little upsetting, as someone who had a similar quality of life to Khan Harris for nearly four years. I then became bedbound...
https://www.bbc.co.uk/programmes/articles/3gxJbg6f1FDv4tzrbtfp1Y3/how-your-expectations-can-transform-your-life Steam came out of my ears when I...
Unfortunately I think it was a closed conference (researchers only). I really want to know what he said (if anything)!
This happened to me after worsening to severe following Covid. Cardio recommended intense physio... The rehab team called me and said no way are...
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