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Page 14 of 17
  1. V.R.T.
    Post

    Who is Simon Wessely?

    This man's theories literally stole my life from me, and the lives of so many others. I was a writer before this and am now too sick to write...
    Post by: V.R.T., Feb 15, 2024 in forum: Psychosomatic news - ME/CFS and Long Covid
  2. V.R.T.
    Post

    The nanoneedle salt stress test – too good a clue to leave abandoned on the lab bench?

    Yes it seems a very odd principle to stick to when so much is at stake imo. Like an honourable thing generally but in this situation incredibly...
    Post by: V.R.T., Feb 12, 2024 in forum: ME/CFS research news
  3. V.R.T.
    Post

    Preprint Genome-wide Association Study of Long COVID, 2023, Lammi et al.

    If Decode ME has a postive result, should we anticipate the Ponting decode long covid study being revived? Or a similar project
    Post by: V.R.T., Nov 19, 2023 in forum: Long Covid research
  4. V.R.T.
    Post

    Long Covid in the media and social media 2023

    'We didn't look very hard for anything therefore there's nothing there, don't ask us to look harder just think better thoughts and get off the...
    Post by: V.R.T., Nov 15, 2023 in forum: Long Covid news
  5. V.R.T.
    Post

    Rapamycin Pilot Treatment Trial for ME/CFS

    Encouraging, and something that definitely needed to be trialed but no control group and an 18month to two year study time is deeply frustrating,...
    Post by: V.R.T., Nov 11, 2023 in forum: ME/CFS research news
  6. V.R.T.
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    We're surrounded by feckless grifters in white coats
    Post by: V.R.T., Nov 10, 2023 in forum: ME/CFS research news
  7. V.R.T.
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Deconditioning strikes after 5 years? This will really surprise my cardio who thought it could set in after a week on the couch with covid. I...
    Post by: V.R.T., Nov 10, 2023 in forum: ME/CFS research news
  8. V.R.T.
    Post

    Ampligen in Phase 2 Clinical Study for the Treatment of Post-COVID Conditions

    Can anyone quote this thread for those of us not on the dreaded X/twitter
    Post by: V.R.T., Nov 10, 2023 in forum: Long Covid research
  9. V.R.T.
    Post

    OMF: Muscle Biopsy and Plasma Study into Post-Exertional Malaise, David Systrom, 2022

    When I was mild I took ibuprofen almost daily to function, although that was when I already felt flu-ish.
    Post by: V.R.T., Nov 10, 2023 in forum: ME/CFS research news
  10. V.R.T.
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I'm so sick of false hope, when will something pan out for us?
    Post by: V.R.T., Nov 10, 2023 in forum: ME/CFS research news
  11. V.R.T.
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I am genuinely surprised yes. I've been following ME research closely for 3 years and I'm genuinely surprised. And gutted. Maybe it'll still be...
    Post by: V.R.T., Nov 9, 2023 in forum: ME/CFS research news
  12. V.R.T.
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Oh Lord, if that really is true after all this time and all of this hope they've built up... Prusty eat your heart out! No honestly this is...
    Post by: V.R.T., Nov 9, 2023 in forum: ME/CFS research news
  13. V.R.T.
    Post

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    After seeing the disappointed responses online, I think it's still unwise to be hyping up a simple clinical trial like this when Ron Davis is...
    Post by: V.R.T., Nov 1, 2023 in forum: ME/CFS research news
  14. V.R.T.
    Post

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    I was ready to curse the omfs name if they were indulging in a Prustyestque overhyping but this is genuinely good news! We've needed this sort of...
    Post by: V.R.T., Nov 1, 2023 in forum: ME/CFS research news
  15. V.R.T.
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    I will DM you at some point then. Hope you feel better soon
    Post by: V.R.T., Oct 8, 2023 in forum: UK clinics and doctors
  16. V.R.T.
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    You're welcome to message me with your experience if you'd rather.
    Post by: V.R.T., Oct 3, 2023 in forum: UK clinics and doctors
  17. V.R.T.
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    I have looked into this drug and it's supposed to slow the effects of ALS not reverse it. Would it be doing similar here, i.e preventing...
    Post by: V.R.T., Sep 20, 2023 in forum: ME/CFS research
  18. V.R.T.
    Post

    Sudden realisation(trigger warning)

    Thank you. I apologise for derailing the conversation here. I have been in poor mental health, and should have heeded the trigger warning.
    Post by: V.R.T., Sep 3, 2023 in forum: General ME/CFS discussion
  19. V.R.T.
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    Thanks everybody!
    Post by: V.R.T., Sep 3, 2023 in forum: UK clinics and doctors
  20. V.R.T.
    Post

    Sudden realisation(trigger warning)

    I just struggle to accept that I asked for help so many times and was convinced I was physically ill in spite of them, and then my GP gaslit me...
    Post by: V.R.T., Sep 3, 2023 in forum: General ME/CFS discussion
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