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  1. Tia
    Post

    Covid-19 vaccination experiences

    I've just written to my doctor to ask if I can get the autumn booster. He added me to group 6 for the initial vaccine so hoping I'll be able to...
    Post by: Tia, Oct 5, 2022 in forum: Epidemics (including Covid-19, not Long Covid)
  2. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks Andy.
    Post by: Tia, Sep 30, 2022 in forum: Recruitment into current ME/CFS research studies
  3. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Has anyone received their spit kit yet? I'm wondering when they are being sent out. Also, wondering if they fit through the letterbox or if you...
    Post by: Tia, Sep 30, 2022 in forum: Recruitment into current ME/CFS research studies
  4. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    :emoji_clap: well done DecodeME team! Also, just to note in case it's helpful for anyone: - I had previously locked myself out of my account by...
    Post by: Tia, Sep 23, 2022 in forum: Recruitment into current ME/CFS research studies
  5. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Don't worry @V.R.T. I didn't doubt that. I was reflecting on some comments on twitter/facebook in my post above. To be honest, I'm not sure my...
    Post by: Tia, Sep 21, 2022 in forum: Recruitment into current ME/CFS research studies
  6. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I've noticed this on social media as well. I understand the disappointment. We all want to feel like our experience could count for something and...
    Post by: Tia, Sep 21, 2022 in forum: Recruitment into current ME/CFS research studies
  7. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Thank you for your help @Kitty but unfortunately I tried it and it didn't work. You got to me in time @Andy ! Thank you. I will do that. I didn't...
    Post by: Tia, Sep 19, 2022 in forum: Recruitment into current ME/CFS research studies
  8. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    arg, I've had my survey ready to send off. Logged in to check it and accidentally, stupidly, pressed the back button on my browser :( Oh dear. Do...
    Post by: Tia, Sep 19, 2022 in forum: Recruitment into current ME/CFS research studies
  9. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Just a thought... I was listening to Adam Buxton's podcast this afternoon and I wondered if it would be worth asking him if he'd do a shout-out...
    Post by: Tia, Sep 16, 2022 in forum: Recruitment into current ME/CFS research studies
  10. Tia
    Post

    Letter to BMJ: "Medical gaslighting: to say that invoking psychological symptoms is equivalent to dismissal is reductionist", Michael Sharpe

    100% That's his approach. He likes to make out that we only reject his model of ME because it's psychological when he must know full well that we...
    Post by: Tia, Sep 16, 2022 in forum: Other psychosomatic news and research
  11. Tia
    Thread

    "Scientists hail autoimmune breakthrough" - the Guardian

    I don't know if this has been posted elsewhere but I thought it was very interesting. I wonder if something like this might end up being helpful...
    Thread by: Tia, Sep 15, 2022, 26 replies, in forum: 'Conditions related to ME/CFS' news and research
  12. Tia
    Post

    Blog: New Study Links 14 Genes to ME/CFS

    Very interesting, thanks Simon.
    Post by: Tia, Sep 15, 2022 in forum: ME/CFS research
  13. Tia
    Post

    Genetic Risk Factors for ME/CFS Identified using Combinatorial Analysis, 2022, Das et al

    Looks good @Simon M , the visual makes it easier to grasp the concept.
    Post by: Tia, Sep 14, 2022 in forum: ME/CFS research
  14. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks @Andy that's really helpful, I'll give it a read.
    Post by: Tia, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  15. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks for clarifying this. The reason it made me pause for thought is that my NHS records contain a lot of personal information that has nothing...
    Post by: Tia, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  16. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Chris Ponting was brilliant on radio 4! I hope they'll be more radio coverage, I think it's a great way to get the message out there.
    Post by: Tia, Sep 13, 2022 in forum: Recruitment into current ME/CFS research studies
  17. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    @Andy I have a question about the option of sharing data from NHS records. I'd like to clarify what this means - do the team get access to...
    Post by: Tia, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  18. Tia
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    email safely arrived here - very happy to see it!
    Post by: Tia, Sep 12, 2022 in forum: Recruitment into current ME/CFS research studies
  19. Tia
    Post

    JK Rowling new book — chronic illness references

    I can't make a judgement without reading the whole book.
    Post by: Tia, Sep 2, 2022 in forum: General ME/CFS discussion
  20. Tia
    Post

    High-dose coenzyme Q10 therapy versus placebo in patients with post COVID-19 condition: randomized, phase 2, crossover trial 2022 Hansen et al

    Yes, the value of ruling things out shouldn't be underestimated. Just on a personal level, if there had been proper trials into all the things...
    Post by: Tia, Aug 3, 2022 in forum: Long Covid research
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