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  1. Grigor
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    I sincerely hope you will not... Yes they will. Emphasis on will. They have not yet been.
    Post by: Grigor, Apr 25, 2023 in forum: ME/CFS research news
  2. Grigor
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    I'm quite happy with the Amsterdam group but I agree with what @Arvo wrote. I'm also very hesitant to get really excited about the group in...
    Post by: Grigor, Apr 25, 2023 in forum: ME/CFS research news
  3. Grigor
    Post

    Symptom-based clusters in people with ME/CFS: an illustration of clinical variety in a cross-sectional cohort 2023,Vaes,Jason et al

    The ME/cvs Stichting who's donators were part of the study wrote a summary of the study. The Stichting is a bit controversial as they've worked...
    Post by: Grigor, Apr 20, 2023 in forum: ME/CFS research
  4. Grigor
    Post

    Exercise Pathophysiology in ME/CFS and Post-Acute Sequelae of SARS-CoV-2: More in Common Than Not? 2023, Joseph, Systrom et al.

    I had emailed with Systrom about this and he said it was only done whilst being on Mestinon, but they failed to mention that in the paper... He...
    Post by: Grigor, Apr 14, 2023 in forum: Long Covid research
  5. Grigor
    Post

    Exercise Pathophysiology in ME/CFS and Post-Acute Sequelae of SARS-CoV-2: More in Common Than Not? 2023, Joseph, Systrom et al.

    Interesting. I wished they would've been clearer about CBT/GET after recommending graded exercise in their previous paper.
    Post by: Grigor, Apr 12, 2023 in forum: Long Covid research
  6. Grigor
    Post

    Producing ME/CFS in Dutch Newspapers. A Social-Discursive Analysis About Non/credibility 2023, de Boer, Slatman

    Here's an interview with her around the same time: https://www.trouw.nl/nieuws/chronisch-vermoeid-en-fel-tegen-therapie~bffc3a3f/
    Post by: Grigor, Apr 7, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Grigor
    Post

    Producing ME/CFS in Dutch Newspapers. A Social-Discursive Analysis About Non/credibility 2023, de Boer, Slatman

    The Dutch Health Council 2018 labeled ME just like the IOM report as a multi-systemic disease. This article didn't mention this fact, but that's...
    Post by: Grigor, Apr 7, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Grigor
    Post

    Producing ME/CFS in Dutch Newspapers. A Social-Discursive Analysis About Non/credibility 2023, de Boer, Slatman

    This was extremely boring and about nothing. I mean some interesting bits, but overall blegh. I had discussions with Slatman who didn't understand...
    Post by: Grigor, Apr 6, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Grigor
    Post

    Research news from Bhupesh Prusty

    We've seen him make statements like this before. I hope he's right of course, but I'd prefer if he would just come out with this news once we're...
    Post by: Grigor, Mar 30, 2023 in forum: ME/CFS research news
  10. Grigor
    Post

    Fibromyalgia patients with elevated levels of anti–satellite glia cell immunoglobulin G antibodies present with more severe symptoms 2023 Krock et al

    Interesting study building on the findings by Goebel.
    Post by: Grigor, Mar 22, 2023 in forum: 'Conditions related to ME/CFS' news and research
  11. Grigor
    Post

    Neurological Dysfunction in Long COVID Should Not Be Labelled as Functional Neurological Disorder 2023 Van der Feltz-Cornelis, Moriaty and Strain

    I don't have the brainpower to read it at the moment. I agree with the title. With the abstract I'm less impressed.
    Post by: Grigor, Mar 22, 2023 in forum: Long Covid research
  12. Grigor
    Post

    Protocol Faecal microbiota transplantation (FMT) in Norwegian outpatients with mild to severe ME/CFS: protocol (...), 2024, Skjevling et al. Comeback Study

    Yikes, but then again. Any treatment can have dire outcomes for some people. Let's hope it's not the case for the majority.
    Post by: Grigor, Mar 2, 2023 in forum: ME/CFS research
  13. Grigor
    Post

    Protocol Faecal microbiota transplantation (FMT) in Norwegian outpatients with mild to severe ME/CFS: protocol (...), 2024, Skjevling et al. Comeback Study

    Looking forward to the results. Can we please have a positive trial, but I'm preparing myself for the worst...
    Post by: Grigor, Mar 2, 2023 in forum: ME/CFS research
  14. Grigor
    Post

    Nature article: 2023 Your brain could be controlling how sick you get — and how you recover

    Thank you. That's very kind. I'll think about it.
    Post by: Grigor, Feb 23, 2023 in forum: Other health news and research
  15. Grigor
    Post

    Nature article: 2023 Your brain could be controlling how sick you get — and how you recover

    I would love to but I don't think my English is good enough to be published anywhere. I did have some additional comments about it as I wrote...
    Post by: Grigor, Feb 23, 2023 in forum: Other health news and research
  16. Grigor
    Post

    Nature article: 2023 Your brain could be controlling how sick you get — and how you recover

    The article seems to be pushing the positive emotion idea, but they also talk about the study by Spiegel et al. from 1989, but in 2007 it failed...
    Post by: Grigor, Feb 23, 2023 in forum: Other health news and research
  17. Grigor
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I personally also try to keep an open mind about it as much as possible, but I just have real issues with the surgeries with so little to no...
    Post by: Grigor, Feb 20, 2023 in forum: ME/CFS research news
  18. Grigor
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thanks again. It's indeed very sad to see. I have to admit though that the whole CCI stuff is not as alive anymore. There were also very few...
    Post by: Grigor, Feb 19, 2023 in forum: ME/CFS research news
  19. Grigor
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thank you so much Trish. Quite shocking she's suggesting buying a collar from Amazon... I'm laughing but really out of disbelief...
    Post by: Grigor, Feb 18, 2023 in forum: ME/CFS research news
  20. Grigor
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    The last video about the treatments including surgery. I can't watch it but probably no mention of the lack of evidence base in relation to ME....
    Post by: Grigor, Feb 17, 2023 in forum: ME/CFS research news
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