I have two patients that were involved. Or one completed. Other was too ill but might give you some background information for a new blog.
Letter to the participants. Original and English translation. [MEDIA] [MEDIA] .
Chantal Rovers. One of the authors created a thread about the study. Here's her opening tweet: "Doubted whether I would share our article on...
True, but still interesting and you wonder what that means on the long run for those who actually worsened by this CBT trial.
Someone mentioned that at the second measurement moment T2 the CBT group shows a deterioration compared to T1, while the control group continues...
I will discuss with this person is he/she wants to share their story.
My post on LinkedIn about the paper. The new Dutch CBT trial for #longCOVID. From my initial scan. All subjective outcome measures. The...
Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial. Tanja A Kuut,...
"Cognitive behavioural therapy lessens post-viral fatigue after COVID-19." No link to the actual publication which is odd......
Enough no. A chance at a better project yes. It will also mean more patients orgs might be willing to work with Groningen which will improve the...
Sums it up pretty well indeed. I wish we could get a better/more receptive project leader. She's not as bad as Crawley, but there are definitely...
Interesting. Heidecke seems to be the founder of Celltrend. https://www.celltrend.de/en/company-profile/management/
Judith Rosmalen is also part of this European project called LongCovid Project. She explained that her Dutch study would be partly funded from a...
I suspect you'll have to approve to that. If many patients refuse to do so they'll have to adjust their plans in regards to sharing. I will...
Yes, but they will add other criteria like ICC, CCC, IOM afterwards. Doesn't change the current state yet and I guess it will still be self-reported.
I'm not sure what you mean by that? We only know what was mentioned here in the thread.
Trial By Error: Dutch Agency Awards Big Biomedical ME/CFS Grant to Judith Rosmalen, Professor of Psychosomatic Medicine...
Not much. She's new to the mix and working together with Rosmalen. She's a postdoctoral researcher at Erasmus MC. That's all I know. It could be...
Yeah, just heard about it yesterday. Pretty awful...
We need a similar switch Crawley > Ponting, Rosmalen > someone not MUPS/CBT/Fink/Sharpe/Wessely etc. related.
Separate names with a comma.
