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  1. Grigor
    Post

    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    Well I was referring to @dave30th. I don't want to spoil the picture with mine lol.
    Post by: Grigor, Apr 10, 2020 in forum: Fundraising
  2. Grigor
    Post

    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    Yes, if you need one of mine lemme know! ;)
    Post by: Grigor, Apr 10, 2020 in forum: Fundraising
  3. Grigor
    Thread

    The distant corona connection.

    My thoughts on the coronavirus pandemic. "We are in a crisis! A pandemic! The coronavirus is spreading. The uncertainty of the unknown is...
    Thread by: Grigor, Mar 28, 2020, 4 replies, in forum: General disability topics and advocacy
  4. Grigor
    Post

    Post-exertional Malaise in People With Chronic Cancer-Related Fatigue, 2020, Twomey et al

    I have a few friends that have sarcoidosis and PEM. Questionnaires are not very reliable....
    Post by: Grigor, Mar 27, 2020 in forum: 'Conditions related to ME/CFS' news and research
  5. Grigor
    Post

    Human Leukocyte Antigen alleles associated with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Fluge, Mella et al 2020

    Holy crap. "We included 426 ME/CFS patients and 4511 healthy" Is that 4511 a typo? Even 451 would be impressive!
    Post by: Grigor, Mar 27, 2020 in forum: ME/CFS research
  6. Grigor
    Post

    Serious Gaming [...] for PW Chronic Pain or Fatigue Symptoms: Mixed Methods Design of a Realist Process Evaluation (2020) Vrijhoef et al.

    Vrijhoef also published this study: Assessment of the scientific rigour of randomized controlled trials on the effectiveness of cognitive...
    Post by: Grigor, Mar 12, 2020 in forum: Other psychosomatic news and research
  7. Grigor
    Post

    S4ME letter to Cochrane re: proposed new Exercise for Chronic Fatigue Syndrome review and patient involvement

    [MEDIA]
    Post by: Grigor, Feb 14, 2020 in forum: Open Letters and Replies
  8. Grigor
    Post

    "Cerebral blood flow is reduced in ME/CFS during head-up tilt testing even in the absence of hypotension or tachycardia... van Campen et al, 2020

    Sadly they are often considered quacks by many mainstream docs. It's slowly changing though.
    Post by: Grigor, Feb 10, 2020 in forum: ME/CFS research
  9. Grigor
    Post

    The Effect of Comorbid Medical and Psychiatric Diagnoses on Chronic Fatigue Syndrome, 2019, Natelson et al

    68% seems a little high?!?
    Post by: Grigor, Oct 30, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Grigor
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I started at a quite young age but was rather on the stiff side. I'm more of a pirouette turner and high jumper. The dancers that are flexible fit...
    Post by: Grigor, Sep 10, 2019 in forum: ME/CFS research news
  11. Grigor
    Post

    Dutch TV psychiatrists critique PACE

    Thank you! Great to see a famous psychiatrists expressing his concern like this.
    Post by: Grigor, Sep 9, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. Grigor
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    That is a great concern of mine as well I don't think people are enough aware of that. When I was still dancing if I locked up my neck I could...
    Post by: Grigor, Sep 8, 2019 in forum: ME/CFS research news
  13. Grigor
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Yes, I'm going to try some of that stuff! Hope I can tolerate it!
    Post by: Grigor, Sep 8, 2019 in forum: General ME/CFS news
  14. Grigor
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Could be. I just copied and pasted it!
    Post by: Grigor, Sep 8, 2019 in forum: General ME/CFS news
  15. Grigor
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    I was getting a bit down. No treatments etc. This bit lifted me back up! "Davis - Treatments being assessed by nanoneedle MS drug Copaxone -...
    Post by: Grigor, Sep 8, 2019 in forum: General ME/CFS news
  16. Grigor
    Thread

    Dutch TV psychiatrists critique PACE

    Hi everyone, A prominent Dutch psychiatrist Bram Bakker has written a book where he published a critical chapter about PACE, CBT/GET and pro...
    Thread by: Grigor, Sep 6, 2019, 2 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  17. Grigor
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    There's now a top Dutch neurosurgeon (not sure if I'm allowed to mention his name) who will operate someone and will, as far as I know, conduct a...
    Post by: Grigor, Sep 5, 2019 in forum: ME/CFS research news
  18. Grigor
    Post

    Researcher Interactions Question collection thread for S4ME Q&A with Dr Karl Morten, University of Oxford, Sept 2019

    What has surprised him the most while working on ME vs his other work?
    Post by: Grigor, Sep 2, 2019 in forum: ME/CFS research news
  19. Grigor
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Very.....
    Post by: Grigor, Aug 25, 2019 in forum: ME/CFS research news
  20. Grigor
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Quite worrying that he wants to travel to Spain in his condition. These patients are they cured?!
    Post by: Grigor, Aug 24, 2019 in forum: ME/CFS research news
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