Cochrane and membership Since 2017 Cochrane is a membership organization. Who can become members? 1 Staff members in certain roles 2...
So if tests did not show a cause for complaints then you have a functional disorder, according to the authors of this study. That does not seem...
Maybe just a small change, so you can keep the recognition but explains your aim/standpoint better. For example me/cfs research sceptic or me/cfs...
This is from 2021 about the relationship between NICE and Cochrane...
[ATTACH] Andrew Gwynne also speaks of ME or CFS in his tweet. I worry about this. Are they thinking of separating ME from CFS?
‘Recommendations to make assisted dying available are required’ [ATTACH] This is outrageous and unethical Edit: added ‘are available’
Apparently mr Riley decided to throw a grenade (figuratively). Could he not just have contacted Peter first? Also that money from ME patients is...
I am wondering if instead of canceling memberships people should do the reverse and apply en masse for membership. Then call a meeting and adopt...
If I were a patient organization; - I would be lobbying government for better care and research - I would be setting up a framework for research...
I would think the most fair board would consist of a representation of the patient community. So at least a few women and also a few patients/carers.
Thank you @wigglethemouse you describe it so eloquently. If these devices work well, maybe in future it could help orthostatic intolerance....
Woman develops vertigo due to auto-immune disease. Treatment involves inner ear devices....
Apologies if this was raised already. I would like to see research into the metabolism. Areas as liver, stomach, gallbladder. Especially since...
My alcohol intolerance is that I get a hangover effect from just a sip, directly and also a poisoned feeling. (I did not vote because it is...
Any speciality should be deprogrammed from the cult before sending patients there. Options after; immunology, internal medicine, maybe...
It seems like a conversion therapy. Is that still legal in the UK? oh found this article https://www.bbc.com/news/explainers-56496423 Conversion...
It all sounds like the unscientific media centre playbook. A playbook that seems to get more and more traction. A web of unscience, politics,...
The PEG was not offered in hospital. It was however discussed in the inquest, as to why other options were not offered.
Agree about the debate about the non-working stomach. The drs in hospital only considered the NG tube I thought?
The point should be moot, she wanted to live, she wanted to eat. A dr should do no harm, a dr should do their best to keep the patient alive....
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