But what about the ethical issue of abandoning, and refusal of funding biomedical research into the disease of very ill people? Even worse forcing...
That reminds me of an article of a very elderly lady (90+). She requested help from her local authority, and before she would be considered had to...
Has this been researched for ME patients with low NK cells? And if yes, was it helpful?
Isn’t it strange that all the other specialty consultants are cheaper than long covid consultants?
‘Pep’ in the urban dictionary https://www.urbandictionary.com/define.php?term=pep Chalder really wants us on amphetamines haha
Agree with all of you points and adding this; there were no actometers right or were not used? So the distance was self-reported and participants...
So sorry that happened to you. Very familiar. How much people would have a better quality of life if we were not pushed to do more than we can.
Yann I am so sorry you were treated this way. And that you and your parents were not properly warned and informed.
What makes it hard that it could be many things. I would suggest logging your activities and the poisoned feeling and see if you see any...
Do you mean what others call a mast cell reaction? Does it occur after eating or certain activities?
Agree
Vocabulary that I would like to change The vague terms: - fatigue/tired have already been mentioned - brain fog, as if I have some kind of mist in...
Clarification on my comment; To me PEM has always been ‘ a worsening of symptoms’ that sometimes has a delayed effect. So direct and delayed...
Agree, it seems we are redefining PEM and excluding an important part of it
But if we find better words, we are able to put them forward in advocacy. Now we don’t have the right words.
What about Deteriorating Stimuli and Exertion Intolerance? Advantage; it would add the stimuli. Edit; leave exertion in
People who have ‘psychological inflexibility’ or people with excellent bs radars?
Some drs should forgo formal medical training and get their degrees from Hogwarts so they can practice their favorite spell ‘psychosomatico’ haha.
This one, for the US study? https://www.cdc.gov/nchs/products/databriefs/db488.htm
Is this official NHS policy now, not offering TPN for fear of infection, even if it means death of a patient? Because the reasoning seems exactly...
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