Great puns, everyone! I learned/played tennis as a kid and I reckon it's about the worst sport to try if you have anything resembling ME/CFS,...
More from the MEA's 2010 survey, this time about acceptability (full survey here...
This is from the MEA's 2010 survey (full survey here https://meassociation.org.uk/wp-content/uploads/MEA-Management-Survey-2010.pdf). The far...
Agree. We know that spontaneous deterioration, or deterioration for reasons other than LP, can happen in ME/CFS - for example, at 12 weeks, 25%...
Meant to also say, I think the general public does not like being made a fool of (eg by being made jump around on a piece of paper), and does not...
It's funny you say that as I am not known for my optimism! But yes, I do think plenty of people are capable of listening to a programme and...
I think it's important that the BBC critiques the LP and am glad this journalist did so. When you have NHS clinicians on the LP bandwagon,...
Interesting how AfME interpreted that table, especially the fifth bullet point: [ATTACH] [ATTACH] It looks, to me, like (some at) AfME had their...
Here's one of those surveys, published in the October 2002 edition of InterAction (issue 42), after the Medical Research Council asked for...
I’ve always thought the timing of the PACE protocol changes need to be seen in the context of the earlier-finishing FINE trial. The protocols for...
Exactly. The CFS/ME Working Group began their work in 1998, culminating in their report to the CMO published in January 2002. The first minuted...
The working group that produced the 2002 report to the Chief Medical Officer included Shepherd, Pheby as well as Chalder, Chris Clark (AfME),...
My guess is that it was about negative patient feedback on exercise and CBT, and possibly about physical vs psychological, but I haven't found the...
I don't know, perhaps people like @Dolphin would recall? Certainly the earliest document in the Trial Management Group meeting minutes - from...
Always reminds me of this:
For Walitt it's both "conscious and unconscious". He was criticizing the terms effort allocation and effort-based decision-making for not...
I completely agree with your overall point, that objective primary outcome measures would have given more reliable results. But the published...
Yes, the birds' preference makes sense. They don't seem to agree that effort preference has to be conscious:
The hard task is coming up with the model you have proposed, that takes it right from the point of infection and explains why patients might feel...
You can see why Wessely/White/Chalder/the Dutch etc opted for fear avoidance and deconditioning, really. Or should we call it, the "easy task"....
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