I see it now! Sorry about that. I've put an edit in my original post so hopefully people will see that. If I hadn't been so brainfogged I would...
The results of this one-question survey could be used similarly to how Action for ME’s 2011 survey was used by White et al in their 2017 response...
I found the tables and figures in this paper helpful - they show what happens on tilt testing with various types of orthostatic intolerance...
Overall, I'm glad that researchers are starting to look at severe and very severe ME. There's something a bit bull-in-a-china-shop about these...
Hi Jonathan, So sorry to hear that your daughter’s health has deteriorated and that you’re facing into a rough summer (and beyond). It’s great...
Yes, exactly! I think these kinds of discussions are helpful - I definitely sharpened up on what Goudsmit and Jason did and did not say in...
I think there are two different things getting conflated here – one is resting excessively and thus doing too little (as you might if following...
@Invisible Woman and @Nellie Pledge have explained the problem very well. @Invisible Woman needed to work through feelings of boredom to get the...
I know what pre-emptive rest is. My point is that the advice to limit “these periods” to 30mins is (a) debatable and (b) easily overinterpreted,...
I think you make a good point in your opening post, @Michiel Tack , about the need to define pacing in the NICE guidelines so that it is not...
Wanted to step in here to say that my personal experience with Dr William Weir was that he suggested supplements that were well within what I...
Yes, I think this study is a helpful snapshot but to really see how people's illness changes over time, you've got to follow them. At three...
I'm not sure I understand your first question - on average, the participants had an illness duration of 7ish years (it varied between groups,...
About the progressive/course of illness question, Stoothoff et al’s 2017 paper (Leonard Jason’s team) is helpful:...
Unhelpful illness beliefs perhaps?
So beautiful @Robert 1973 . Particularly loved your and Kaeley's vocals. The combination with images from people's rooms and quotes is very...
I think even in my early, most naive days if I’d been asked to parade around with an artificially filled grocery bag, then watch a video of myself...
Me too. I'm slower to swallow apparently simple solutions for any health issue. This endocrinologist always highlights that obesity and...
Thanks for taking the time to do that, @Lucibee . I think that's 'cos it's wobbly, like all good jelly! More seriously, I think it tells us a...
I agree, and I've read your blogs on the CFQ. I think it's nice to have NHS data to demonstrate what happens when you try to use a tool that...
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