The lead investigator of FINE was telling people that ME or CFS was like really bad jet lag. Since that's how those providing the care were...
Yes, they learned that a Dutch trial or trials had null results for it, so they decided it didn't accurately reflect "fatigue"--just as Knoop...
it didn't exclude the studies (PACE had "objective outcomes"). It excluded the objective outcomes from the studies--a change with the new protocol...
we had a rehab trial for severe patients, or at least homebound ones, called FINE. The PACE team kept touting it as their "sister trial"--but the...
I hadn't thought about it that way! In general, I'd say it's probably better not to launch a crowdfunding at exactly the same time the country...
yes, it's sad. I know.
https://virology.ws/2025/04/14/trial-by-error-my-visits-with-alem-matthees-2025/
Not really. I've tried. Certainly there haven't been academic streams. And that idea is of course totally out the window, given what's going on...
That's actually from his mum, Helen. Although she likely tells him she's doing that. I very much appreciate their support.
I would say there's an aversion to claims of psychological causation from observational studies designed to find associations only and to claims...
Thanks. It seems she's never really met an illness she couldn't turn into a psychosomatic condition.
So they included patients with required PEM per CCC (although optional with Fukuda) and then excluded patients with PEM?
I interpret it as meaning, "It's a convincing-sounding idea, but we have no evidence for it."
Come on! It's based on the explanatory power of recent symptom science.
Thanks! And I just posted about it here. What a non-responsive response!! They don't mention the main point--their primary outcome findings were...
My only concern, in re-reading the passage at the end of my letter, is that I used the word "lapse" twice so close together without realizing it....
Another reason why the request that I should submit a rapid review in order to trigger responses--from the authors and from the journal--doesn't wash.
I actually considered it, but I don't want to play that game. If the authors hadn't already rejected the need for a correction, that would be...
https://virology.ws/2025/03/28/trial-by-error-bmjs-strange-response-to-our-letter-of-concern-regarding-living-systematic-review-of-long-covid-inter...
The fact that they felt forced to update their very recent comment shows, I think, they're scrambling to get out of the hole they've dug for...
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