What do we mean by ME/CFS being real? A clinical category? A biological difference? How would ME/CFS being real fit into the possibility of there...
What I don’t understand, is that it looks like the probiotic group broadly had a stronger immune response, but also had less symptoms? Wouldn’t a...
Oh no, that’s GET. And later on in the article it attributes the improvement mostly to “willpower”.
I think this article is somewhat useful to show how media representation of the illness is not representative of the average experience of the...
Is it big that they found WASF3 as an implicated gene? Is that a sort of indirect replication of the findings by Hwang’s team?
For me it’s a part of PEM. After I overexert, it feels like my body sends some signals (perhaps adrenaline or something) to compensate. I feel...
My impression too. Outside of western anglophone countries and germanic and nordic countries. There seems to be extremely little awareness...
https://bsky.app/profile/daniellebeckman.bsky.social Danielle Beckman (Long COVID researcher): Our grant was not restored, but I am happy to see...
Having an ally in the senate really pays off. Wow. That’s a lot of money that would have been gone that we’ve got back.
I feel like they see it kind of like climate change. Where every country is like “Well it doesn’t matter what I do as much as it matters that...
Long click on the bit that says the time and date the post was posted. It should come up with a link you can copy. Took me a while to figure out.
Could you share the quote? Article is paywalled.
Lots of anecdotes. No serious research yet. It really frustrates me because it seems actually worth doing a small RCT on given how much people...
Do you mean that the administration will prioritise Intramural research so they can have more control? Or just that they will shut everything down...
If I take common LC symptoms like “diahhrea”, “insomnia”, “acid reflux”. All those are objectively measurable, ie. counting bathroom visits, sleep...
Thanks this is useful. Hopefully this will convince my Dad.
Very Much Ironically, the Bath Chronic Fatigue service’s BACME page says this: “We believe that all clinical care should have an evidence base....
Yeah. I’m not sure they claim anywhere that this is CBT for management. That sounds like the same old thing. Thanks though. Still useful.
I have a question. I’ve heard people say that clinics in the UK that offered Curitative CBT often rebranded themselves as offering “CBT for...
Yes ahahha. That’s so cool. I didn’t know it made it out of France/Belgium/Switzerland. :)
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