I tend to define it as PEM by how severe it is and how long it lasts, instead of whether it is instant or delayed.
I think the stress thing isn’t universal. I’m probably as stressed as I’ve ever been managing my energy so I have enough to eat and do the tasks...
I think the vast majority of people in these groups are lurkers who believe in the magic because the only ones they see talking are people who...
less chance of destroying your knees elbows or ankles. (As someone who was a bit reckless sports wise as a teenager and had to pay for it, and...
Yes, and the guests actually have to pay her to be on the show and sell their product. So the whole video is basically an advertisement....
I really feel weird when I see so many people celebrating studies like these on social media. I don’t wanna be a party pooper, but like it pains...
I think that’s what upholds the attitude. But I also think for a lot of people it’s less deep than that. Humans naturally seek meaning in...
This is exactly the kind of pseudoscientific stuff the founders of the psychosomatic movement pushed in the early 20th century (except with far...
A lot of pwME talk about a wired feeling, sometimes described as adrenaline rush, anxiety attack, fight or flight. It’s very possible that these...
“pacing” as defined by pretty much every doctor I’ve seen in french-speaking Switzerland who’d heard of the term meant “pacing up” to them. “Oui,...
In a lot of ways, they are part of the “hysteria” equivalent of our time.
I’ve started getting more and more this “poisoned feeling”. It seems to often coincide with PEM; and come up during sleep. And it’s just an...
DED, delayed exertional deterioration. Quite descrptive since it makes me feel DED.
I’m too foggy to understand anything but this looks interesting I think? Somewhat sceptical of the strong claims made here:
Wrong software, but I want to repost/retweet this. Because yes. 100%. Yes.
I don’t think we need to change Exertion in PEM. I just thing we need to be more explicit about mentioning passive exertion (ie. cognitive load,...
Cool thread idea. I question, are there any phrases that are wholly accurate and non-minimising. I think I’d have an easier time making a list of...
I think FUNCAP is about as nuanced as you can get, for measuring functional capacity in people with PEM. FUNCAP can pick up very small changes or...
Solve ME is matching donations double upto 10k today. https://bsky.app/profile/solveme.bsky.social/post/3lloyumb7v22t
I really think FUNCAP is a step in the right direction.
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