I have ordered JemPD’s recommended earplugs for what it’s worth. I find them about as effective as loop quiet’s for my earshape. Possibly a little...
I thought this for a long time, but electrolytes make no difference so idk. Thank you for the blog post though, I will scan through it and maybe...
Gastric Symptoms; Reflux, Nausea, Diahhrea, (Weird feeling of hunger probably linked to reflux) Autonomic: Tatychardia, Overheating, jitteriness,...
I’m glad you mention this, I relate with it very much. Because when I have this feeling I drink 8+ litres of water a day. Sometimes 12 liters...
From wikipedia, for people like me who have no idea what it is.
The football club St Pauli, a historically leftist and activist club, had people flying ME/CFS banners last match in the stadium. [ATTACH]...
So stimulants make you able to do more and decrease fatigue, I thought we knew that a long time ago. We don’t prescribe them though for obvious...
I’m not sure that’s the case in French. I looked online it seems that any number under nine has to spelt out bar a few exceptions like dates,...
Is there a way to share these kind of opportunities with friends and family without unintentionally pressure on them? Or is this more the kind of...
I am so absolutely angry for you @Wyva . This doctor seems completely oblivious to the massive power indifference, and seems to be (intentionally...
Cruelly ironic.
Similar thoughts. Everyone around me thought I would get back to normal within a year or two, because I was young, so it didn’t matter how much we...
Je trouve globalement superbe. J’ai que un ou deux petits commentaires. La liste à puces au début: “Elle touche environ 1 personne sur 250”… Je...
(Please remove this comment if it is fluff clogging up the thread, but I just want to say I’m very grateful this is happening) :)
Interesting experience. I wonder how different it would feel it I could feel both. We don’t have gas in our building, heating and stoves are...
Without one, Severe advocates are putting themselves at risk. It’s time for advocacy organizations to step up....
Do we have any update on this? If ethics was any concern the study would have been discontinued after @RaviHVJ ’s email. But I’m imagining it wasn’t?
Yeah I had to skim the paper. The section subheadings offer a pretty good summary: Self Tracking as a Curse Overwhelming and tiring work...
I think that’s what I’ve previously called it. But I’ve tracked a lot and it doesn’t seem to have any relation to eating or eating histamine rich...
I thought mostly the same. Until I had a period where I was so severe I lost 99.9% of communication ability or do anything but drink liquid food...
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