this is one of my fears as I became bedridden at 19 if let's say in a decade or something I'm magically cured. Since I have no degree except high...
which is a cursed vicious cycle, when poor sleep causes PEM…
Same. My entire outlook on the world before getting ME was a sort of external world sceptic, moral non-realist, post-modernist and...
All those studies are retrospective and with therapist and selection biases. The only study I know of that actually followed a group of people...
Okay. But then there is no evidence behind your point. It is an opinion. Something unproven. Like claiming pwME have mitochondrial damage. (a...
I think this point is moot for the reasons I elaborated with the post right before yours, but surely if it was a solid argument it is falsifiable....
The simple fact no one with ME/CFS is anle to completely avoid PEM except mild patients and that’s probably rare. Most of us continually trigger...
So your argument is that someone who avoids exercise won’t be aware of a natural recovery. Not that the natural recovery won’t happen? That’s an...
Again, this is an assumption by you, not a fact, so if your premise relies on the assumption that avoiding exercise impedes recovery, and then...
What? People on [twitter or whatever] saying they avoid exercise is definitive evidence that fear avoidance prevents natural recovery? Surely...
Or that people who have PEM, avoid exercise, and people who have PEM don’t respond to CBT as well?
I think undeniable is an absurdly strong claim. We have very little evidence of any sort of quality that “fear can prevent natural recovery”....
Yeah where are the self-appointed martyrs “defending science” from “activists”/“militants” now? Almost like “defending science” is supposed to...
I think I had an account pushing some “prof stark” stuff follow me on bluesky but I didn’t really have the energy to check what it’s all about....
Yeah it’s weird. If the point is to avoid PEM. Try pacing strict. If the point is to test that some softened “PEM aware” version of Graded...
Yeah I don’t get it. I currently live in dark room and can’t even speak. But if say tomorrow I was magically cured and I was never told. I’m...
Same. My coping mechanism was to push through. When I first got ME my first reflex was to exercise more — push my limits. Try to break my cycling...
I don’t mean in terms of symptoms, but in terms of ability (disability). Like if you describe very severe as: Mostly bedridden, can only sit up...
That’s unfortunately much of the fields of psychology/psychiatry. Their methods are broken. They can’t reliably distinguish truth from bias. But...
I’ve found defintions of very severe to be especially consequential. Because they sort of define how bad the illness can get. Which means...
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