Just a note that this won’t apply to severe people as a question (atleast those of us who are horizontal 24/7). That’s not necessarily a problem,...
Me neither. I’ve never heard of the word before (english is my second language), but it doesn’t sound very good.
Isn’t “central sensitisation” in it’s broad sense a symptom of all sorts of neurological diseases. Ie. being more sensitive to stimuli. The CSI...
For what it’s worth I really have enjoyed reading your blogs.
Agreed. This is what I sent.
“The Baron(ess) of ME”
Oh thank god. I’m quite tired of every other long COVID study presenting it as a homogenous disease separate from everything else. Oh no. Back to...
Tangentially related but it really feels like the psychosomatic rehabilitation industry exists as an effect of a Foucaultian Diapositif, forming a...
I submitted a short comment because this felt quite close to me. My long COVID and ME did initially start out as a gastrointestinal presentation...
> I have an undiagnosed disease. > I have to miss loads of school because I need to go from doctor to doctor to get loads of tests because they...
I doubt anyone here disagrees with that. But the speculation is how it might be funded if only partial funding or even an outright rejection is...
Isn’t the MEA sitting on a couple unused millions. I mean it’s kind of like going “all in” but could be a good use IMO.
Or due to 1 in five people dropping out.
IIRC, 23andME doesnt do the testing themselves, they order it through a company. And you can order your testing directly though that company too,...
Looks complicated. I wish it was standard medical practice to order WGS of severe people. Would make a fascinating dataset and be very interesting...
So technically this could be 1/10’000th or whatever of what constitutes the ME/CFS syndrome construct. But what I meant to ask in my comment is...
See interesting case of a rare genetic disorder: TANGO2: A Rare but Important Mutation 2024 Walters et al
I wonder how this would be hypothetically differentiated from ME/CFS without a genetic test.
In this context, what is the difference between an inflammatory and a non-inflammatory event, I’ve always had troubling pinpointing down what...
I quite like that the name has ME/CFS and sceptic in the title. But the exact phrasing “ME/CFS Skeptic” may scare off some more “casual” people....
Separate names with a comma.
