I’m aware this very likely isn’t feasible for a large multitude of reasons, but I feel like S4ME would be uniquely qualified and good at...
Yet they still treat long COVID patients like sh*t. Old beliefs die hard, doubly so if it has an in-group vs out-group dynamic. The colleagues...
Probably best not to. I can imagine this sort of person getting all sucked up into lightning process type stuff.
To be fair paed has the same root as ped in pedophile, which comes from ancient greek “paid” meaning children. But yeah it’s kind of baffling...
Yes it’s full of falsehoods. It’s as if they made up a definition of ME/CFS to match their theory, but that definition reads nothing like how...
Certainly doesn’t work in french, but to be fair translating the underlying words gives EMPE. I’m not aware of what PEDE could mean in english?...
The OMF in my view has been the most successful at creating an online presence and establishing itself as the charity of choice for pwME to donate...
@Sly Saint I think the “January 2024” in the title is a typo. I assume 2025 was meant.
I think this one is especially important.
Maybe part of the story, but for the vast majority of ME patients who aren’t “activists” or very “informed”, they don’t see ME the same way we do....
I know this isn’t a massive sample size but it’s refreshingly large compared to the 5-10 patients in most studies. Interesting hypothesis. Sounds...
This is really interesting phrasing for PEM, and I have to say, as a severe person, it encompasses my experience far better than “PEM”.
I’m actually really surprised no causal links were found, between lots of pwME being misdiagnosed with MDD as opposed to ME and lots of people...
TLDR is they aren't denying her accusations but say that the accusations don't amount to misconduct.
So nothing? (I know I'm being pedantic and they probably mean "management")
To be fair a lot of people with FSS are initially misdiagnosed with stress related syndromes (like burnout), so it’s no surprise the groups are...
How I wish people realised this.
Very very much agree.
That’s the referall hash. I couldn’t find the study I had previously read last week on duckduckgo so asked an AI bot to search and find it for me...
I wonder if the Sick Times would be willing to do a piece. I know they aren't an "outside the community" type of source, but I think a sympathetic...
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