I think I’ve said this before — but I think the current model of peer review serves more to ensure ideological compliance, than to ensure quality....
I don’t know where to post this. But I read this the other day and it made me think of this thread. Apparently human manual labour (like digging...
Yeah honestly many people may look at me weird, but I’d rather a drug that makes me more tired than less tired. I’m triggering PEM all the time...
I actually think the vast majority of ME/CFS researchers assume PESE and PEM are the same thing. (PESE = Post Exertional Symptom Exacerbation)....
The "long COVID" being in quotes in the title makes me feel a bit icky.
I agree that it wouldn't suprise me that suicide is linked with ME. Not only have a bunch of studies looked at the link and found significant...
I kind of disagree, even though I think my onset was progressive as well. I think it's unlikely that we find a treatment that works for everyone...
Yay!
Yes have experienced decently often. When in PEM it feels like I have to exert far more mental exertion to get my body to do things. Like my...
1) Yes 2) Yes For me it felt more like the PEM came from sensory overexertion of having someone touch me than my legs being gently moved. (And...
I think Wessely wrote something about choppy seas but glorious voyage or something like that when describing PACE
I unfortunately can't really do videos more than 5 mins long and need subtitles so I can't watch or attend these sorts of things but was just...
@Kalliope did you attend? If so what did you think?
Seems to be a common problem, not sure many psychiatrists these days have internalised that most the illnesses they diagnose are made up labels...
Yep when you look at how studies like PACE were conducted. It’s glaringly obvious that PACE was an attempt to produce “evidence” that GET/CBT...
Cf. The few bps papers we have managed to get a correction on the outright lies/manipulation
Quite a few other long COVID adjacent papers in the top 25. Almost as if, you know, long COVID is common and people have to read papers for...
Especially worrying given this survey was created by a Long COVID charity that should surely be aware most pwME can’t work.
Maybe I’m misinterpreting but I think funcap does this well. Although it’s more about what you think you can do / consequences for doing...
I actually ended up doing my first year of uni abroad in vienna, because they offered a lighter courseload and I was already feeling too ill for...
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