Yes. Which is why there should be a specific amount set aside for different conditions. Otherwise the condition who attracts the best researchers...
It’s hard for me to be optimistic when this is the current trajectory.
Even if unique to ME, it may be an effect.
So surely, they will atleast double their ME/CFS funding now, right …? (a man can dream)
Does this website get frequently visited? Fandom is usually a hosting site for websites about shows, movies, and books. Doesn’t inspire confidence.
God complex. You’re told it’s your responsibility to recover, confuse correlation and causation, and all of the sudden you feel like a shaman who...
And why a standardised PEM screening questionnaire that doesn’t just focus on fatigue (cough DSQ cough) would be really useful.
This is a big one. The it’s not a real illness therefore you as an individual have to take the agency to solve your illness yourself means people...
Definitely the “publish or perish” culture means immense amounts of worthless drivel is published. But the UK does invest a decent amount into...
Some journals sometimes publish letters to the editors. Apart from that, it’s usually not to hard to start an email thread with a researcher.
This same doctor if they were practicing in the 80s: (spoiler because contains homophobic stance) [SPOILER]
I know this is a symptom experienced by a proportion but it seems weird tho put it as the first symptom. I doubt it affects everyone with ME and...
But isn’t the “syndrome” defined by the symptoms? And anyways, a lot of people decline in ability - ie. severity when in PEM, so “get worse” makes...
Yeah you’re getting it right, they seem to have found that the “female” variable induced a 24% difference in severity. (Assuming that’s an...
Yes. Among BPS doctors there’s the belief that interacting with others with your illness will actually make you worse, they likely pass that...
I guess when you’re making a career out of publishing about a syndrome and claiming you can treat it, it’s inconvenient to say the cause is...
They find what they are looking for, its a self fulfilling prophecy.
Abstract: Approximately 10% of patients experience persistent symptoms following COVID-19, known as long-COVID syndrome. This cross-sectional...
I kind of get this study. But it kind of feels like they are saying a band aid treats a wound. The large majority of people in online communities...
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